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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Thursday, March 29, 2012

Empowering sufferers with a voice and a means to pursue research

I would like to thank everyone who participated in the discussion in the post, "Discussion on the MEBO-Menssana Alveolar Breath Research Study." Please feel free to continue posting your opinion in that post, and let your voice be heard! It is OK to post anonymously, if you prefer. It is MEBO’s intent to give a voice to sufferers when most if not all feel no one listens and understand. With posts like this one, MEBO is attempting to empower sufferers to make a difference. Brainstorming new and innovative ideas are always welcome, including opposing views.

MEBO Research is a sufferer-funded, patient-advocacy group intent on pursuing research to understand the causes of body odor and halitosis conditions of all types. These conditions include, but are not limited to, malodor intra-oral and extraoral halitosis, malodor presenting in all parts of the body such as generalized body odor, TMAU, bromhidrosis, groin odor, out of the ordinary vaginal and anal odor, IBS related fecal odor, and others.

No one individual is MEBO Research;
all sufferers are invited to be MEBO Research.
It is up to sufferers to come forward and be a part of this movement, influence its direction with each persons's opinions and participation. No one individual is MEBO Research; all sufferers are invited to be MEBO Research. We will very soon be inviting sufferers and their families to register as MEBO Research Members free of charge, so that we can be called upon to participate in research (on a voluntary basis without obligation), and in raising awareness mass email/letters campaigns, etc.


Menssana charges MEBO $300/USD for each sample we send them for analysis, and there is no limit to how many samples MEBO sends them in a period of one year. Menssana has covered the initial shipment of the BCA instrument to Mike in Chicago along with the required attachments, but MEBO is responsible for shipping the mouthpieces back to Menssana, and for shipping the BCA instrument to all the testing sites within the US and abroad, including shipping insurance and Custom's Inspection fees. There have already been expenses, such as the cost of registering an Institutional Review Board (IRB) with the US Federal government, to ensure that this study is of a high caliber and each subject is duly protected with this ethics committee. There is also the expense of renting a location in each city where sufferers will gather to take the test, and an insurance policy required by Menssana. As one would imagine, these costs do add up very quickly.

It is up to sufferers to come forward and be a part of this movement, influence its direction with each person's opinions and participation.
The MEBO community needs to brainstorm to come up with fundraising projects to cover these costs. Brainstorming, thinking outside the box, and proactive participation from the whole international community toward this purpose is much appreciated.

I thank everyone who has given their comments regarding this test, and ask for more participation from all sufferers around the world.


María de la Torre
Founder and Executive Director

A Public Charity
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