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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Tuesday, March 6, 2012

Work from home leads

An amazing woman who has been suffering from a body malodor condition called me in December with the most refreshing and inspiring approach to life in spite of her condition. We have spoken numerous times since then, and even though she is experiencing the same emotional pain all sufferers go through, she has an inner drive to find solutions and to help our community. She asks to be referred to as MS only to not disclose her name, but rest assured she is doing a great deal of groundwork behind the scenes to find some assistance to all sufferers. She is a true inspiration to me. While she pursues ways to help all sufferers, MS sent me this email with employment information that we hope will be helpful.

Employment


Go to any of these 11 websites, hopefully, you should be able to get a job.
  1. Sykes.com is currently hiring for Work From Home Customer Service Representative

    https://workathomeassess-sykes-home.icims.com/jobs/1174/job?hub=12
  2. Apprenbutlerhill.com is currently hiring for Web Search Evaluators Work From Home

    http://tbe.taleo.net/NA5/ats/careers/requisition.jsp?org=BUTLERHILL&cws=4&rid=213
  3. U Haul.com is currently hiring several Work From Home position in the Phoeniz AZ

    http://jobs.uhaul.com/contact_center.aspx?jobtype=workfromhome
  4. www.theladders.com (Salary start at 40K to 125K)
  5. www.Craigslist.org
    Always put these words in Work from Home or Work at Home, or Telecommute then put customer service position as example.
  6. www.WAHM.com
    On the left hand side Scroll down Click on Work at home job
  7. www.Wahjobleads.com
  8. www.Ziprecruiter.com
    Excellent website for Work from Home or any job.
  9. www.Juju.com
  10. www.newcorp.com (Work at home customer service representation)
  11. www.jobfox.com
  12. www.indeed.com

Thank you to this lovely lady for caring about others in such a loving way.

María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
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A EURORDIS and NORD Member Organization

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