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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, August 6, 2012

London Alveolar Breath Exploratory Study & Arun's Thames Festival Meetup 2012

[Podcast removed by user]

Thames Festival Meetup 2012

As he does every year, Arun is organizing the Thames Festival Meetup to be held on September 8th & 9th. It will take place at 1:00pm at the Tattershall Castle, moored on the River Thames near the Embankment Underground Station.

I am sorry to say that I had to miss this annual meetup last year due to my mom's surgery, but I am so very much looking forward to attending this year. I miss seeing my European friends that I met the three previous Thames Festival Meetup, and can't wait to see them again this year and to get to know many other new people.

(See links to Arun’s video of Thames Festival Meetup below)

Alveolar Breath Exploratory Research in London

As a separate event from Arun's meetup, MEBO Research is conducting the Alveolar Breath Exploratory Study test between 10:00a.m. and 12:00pm at the Guoman Tower Hill Hotel, prior to the commencement of the Thames Festival Meetup, which is approximately 6 miles from the Tattershall Castle. It was intentionally scheduled for this time so that some sufferers from distant places, including other countries, could come and enjoy both events in only one trip. Anyone interested in testing, is welcome to fill out the requisition form (see link below).

Looking forward to seeing everyone there!

MEBO Research International
Aveolar Breath Study
Provided by the
Menssana Research Inc

*Below are links to the test results of a participant who volunteered to share them with us so that we may have a better idea of what to expect. We hope to receive normal ranges from Menssana for comparison although this was not our agreement with Menssana. As noted in previous posts in this blog, the final interpretation of these results will not be determined until after the one-year study has been completed.
  1. *Alveolar test top 20 VOC's for one volunteer's sample
  2. *Alveolar test full list of VOC's tested : another volunteer's sample
  3. *Alveolar test chromatogram of another volunteer's sample
If you have additional questions please read all posts on Alveolar Breath Study, and if your question is unanswered, email us at


María de la Torre
Founder and Executive Director

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