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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Wednesday, May 1, 2013

Raising Awareness Video WTXL, Tallahassee

Posted: Wednesday, May 1, 2013 6:15 pm | Updated: 7:07 pm, Wed May 1, 2013.
Christina Reznack

[Christina] Some sufferers describe their scent as fishy, a reason TMAU has earned the nickname "Fish Odor Syndrome." Others say they smell like garbage, rotten eggs or even burnt rubber.

[Maria] "What happens is there are other chemicals in the body." "Just like any fragrance, if you put some perfume on your skin, it might smell a little different on different people because of each of the various chemicals in your body, so that's why we need to find out about the other chemicals that come through...

I started this company with the idea of trying to unite researchers, experts and sufferers so that we could try to work together. I realized there is some information, I just didn't know where to look, and there was a tremendous need to bring all this information together. So I did."

[Christina] For people like Mardis, it is another outlet for her to spread her message of hope.

[Lisa] "I'm here to let you know that you are a beautiful person, and unique, and never give up," Mardis said, "Because there is hope out there. We can support one another. We can be there for one another."

[Christina] To learn more about TMAU or get involved in helping MEBO's research efforts by donating money or volunteering with the organization, visit their website at

Visit Lisa's support group

Our gratitude goes out to Abe McKinsey for his art contribution.

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A EURORDIS and NORD Member Organization 


Anonymous said...

Thank you Maria. Thank you Lisa . Thank you Abe Abe .

May 3, 2013, 5:20:00 AM
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