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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, June 7, 2013

BDJ article DIMETHYLSULPHIDEMIA: top 10 most read in May2013

We are so very proud to say that the Scientific Adviser to MEBO Research who published his paper in the British Dental Journals (BDJ),

Dimethylsulphidemia: the significance of dimethyl sulphide in extra-oral, blood borne halitosis.

has received a congratulatory email from the British Dental Journal today saying,

...your BDJ paper "Dimethylsulphidemia: the significance of dimethyl sulphide in extra-oral, blood borne halitosis," was one of the top ten most viewed 2013 BDJ articles in May.

How great is that! And it will have been written only two months ago on June 12th. This is indeed an honor for MEBO Research to have such an expert who has given countless hours of his valuable time and pro-bono work to support MEBO’s Mission. This work of his has contributed greatly to our Raising Awareness Campaign (scroll down on this link to see all posts).

The British Dental Journal audience consists of “dentists, dental undergraduates, members of the dental team, hospital, community, academic and general practitioners,” and as one would expect, a significant amount have read the following discussion in this paper, which, as noted in the abstract,
  • Outlines the prevalence of halitosis in the general population, its classification and psychosocial implications.
  • Reports that about 10% of genuine halitosis cases are caused by extra-oral phenomena, giving extra-oral halitosis an estimated prevalence of about 0.5-3% in the general population.
  • Reviews the causes of extra-oral halitosis and how to differentiate these from intra-oral halitosis.

In addition, some of the readers of this paper in the month of May 2013 were from our community. When I say our community, I mean any and all sufferers from all forums, blogs, Facebook pages, websites, and partnership sites like RareConnect, for example, whoever suffer from any BB/BO condition, are family members of, or are simply interested in a greater understanding of breath and body odor conditions. ALL OF US BELONG TO THE SAME COMMUNITY!


This is who we are – one voice in our Raising Awareness Campaign, whether we are writing articles on breath and/or body odor conditions or reading articles written by our experts! Whether we suffer from halitosis, body odor stemming from IBS and/or other similar digestive tract disorders, or TMAU, Bromhidrosis, or a combination of these, we become a significant and effective force when we present ourselves, and are perceived as, a unite cohesive group – one community in our Raising Awareness Campaign. No matter what forum or site we call home!

Our most profound thanks go to this
very talented and beloved author.


María de la Torre
Founder and Executive Director

  A Public Charity (em português)
MEBO's Blog (English)
El Blog de MEBO (español)

A EURORDIS and NORD Member Organization


Anonymous said...

Awsome, it is uplifting to read this, it feels good to know people are helping not judgeing, this does help us get back up when people try to knock us down!!!!!!!! Thank You to everyone in the community.

Jun 7, 2013, 9:07:00 PM
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