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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, October 17, 2013

Webinar #7: "Seeking Employment" Cheryl Fields, this coming Sunday



Cheryl L. Fields, MBA, Ph.D. (ABD)
Human Resources Consultant
MEBO US Community Outreach Director



Even though the employee and employer right discussed are based on U.S. law, much will be discussed on sufferer's needs and challenges at the work place, and coping techniques sufferers from around the world can use to attempt to overcome the emotional and social challenges at the workplace. Please come prepared with your questions and comments for Cheryl for the Q & A session, which will take place after the presentation.

Cheryl will talk about the the dos and don'ts of job seeking, from writing a résumé 21st century style, to the job interview experience, to on-the-job and work environment issues for sufferers of body and breath odor conditions. (See RareConnect invitation to the event).

Please set your calendars to this event.


You can calculate your time zone with this tool so that you don't miss this valuable presentation. Go to this site to help you determine your time zone.

Barcelona (Spain - Barcelona)            Sunday, October 20, 2013 at 5:00:00 PM  CEST UTC+2 hours    
London (United Kingdom - England)        Sunday, October 20, 2013 at 4:00:00 PM  BST  UTC+1 hour     
New York (U.S.A. - New York)             Sunday, October 20, 2013 at 11:00:00 AM EDT  UTC-4 hours    
Chicago (U.S.A. - Illinois)              Sunday, October 20, 2013 at 10:00:00 AM CDT  UTC-5 hours    
Seattle (U.S.A. - Washington)            Sunday, October 20, 2013 at 8:00:00 AM  PDT  UTC-7 hours    
Mexico City (Mexico - Federal District)  Sunday, October 20, 2013 at 10:00:00 AM CDT  UTC-5 hours    
San Jose (Costa Rica)                    Sunday, October 20, 2013 at 9:00:00 AM  CST  UTC-6 hours    
Rio de Janeiro (Brazil - Rio de Janeiro) Sunday, October 20, 2013 at 1:00:00 PM  BRST UTC-2 hours    
Lima (Peru - Lima)                       Sunday, October 20, 2013 at 10:00:00 AM PET  UTC-5 hours    
Mumbai (India - Maharashtra)             Sunday, October 20, 2013 at 8:30:00 PM  IST  UTC+5:30 hours 
Melbourne (Australia - Victoria)         Monday, October 21, 2013 at 2:00:00 AM  AEDT UTC+11 hours   
Manila (Philippines)                     Sunday, October 20, 2013 at 11:00:00 PM PHT  UTC+8 hours    
Corresponding UTC (GMT)                  Sunday, October 20, 2013 at 15:00:00                        
How to use the Time Zone Converter

  1. To enter the webinar meeting room, click here,
  2. Register as Guest (invited) with your name or username. No password is necessary.
  3. Connect your headphones.

See you all there!


María de la Torre
Founder and Executive Director

A Public Charity (em português)
MEBO's Blog (English)
El Blog de MEBO (español)

A EURORDIS and NORD Member Organization 


Anonymous said...

I'v seen that 24th of Sept. testing 7 is done going on 8th batch:do you know how soon we will get the results back from the test...Sharon Luhmann

Oct 27, 2013, 3:51:00 AM
Maria de la Torre said...

We are expecting the results from the lab anytime this coming week. MEBO has 16 kits sold for Batch #8, of which we have received 6 samples, and we need a minimum of 15 to create a Batch to ship to the lab. In addition, MEBO has sent 8 kits to the new lab in Brazil to collect samples and ship them back to MEBO. It's not easy to predict how quickly samples will be shipped to MEBO with any of the kits already shipped out.

Oct 27, 2013, 10:55:00 AM
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