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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Tuesday, December 10, 2013

Reaching Horizon

What would the day be like, when an effective treatment or a cure is discovered?

Some dare not dream for fear the disillusionment will crush any remnant of wearied strength. Even still, some of us dare to dream, as we believe that an answer may very well be just beyond the horizon. Hope increases as volunteers come forward and carry for us the banner of Raising Awareness, Fundraising, Community Outreach support with strong leadership and participation in the various FaceBook sites and RareConnect, and many more projects. We have the wherewithal to make it work. It's a personal choice.

The following is a poem written by one of our own, Ben Rimmer, as he envisions freedom beyond the horizon. Thank you Ben for sharing this with us.

Awaken every morn-
Alive with smile.
Condition unknown,
Ahead lies trial.


Hourglass empties,
Blissful time ended.
Cavernous despair,
Deeply descended.

Sanities savior-
steadfast denial.
Subsequent solitude,
Imprisoned in domicile.

Condition discovered,
Poor Calibans plight.
Societies pariah,
Incessantly we fight.

Strict regimens,
Fruitless solutions.
Hygienic rituals,
Frequent ablutions.

Wistful lives,
Merely surviving.
A measure of Hope-
Research is reviving.

As darkness pierced,
by sun arisen.
A treatment revealed,
Reaching horizon.

Tears of sorrow,
Of unconscionable pain-
Now tears of rejoice,
Falling globally like rain.

Parades and confetti,
Foods of all kinds.
A day to remember,
Within each of our minds.

Even as darkness arrived,
Beginning the night.
An unknown twinkle of sky,
A new star came alight.

Benjamin Rimmer

2 comments:

Anonymous said...

This is a very good poem. I hope the author will write more on this subject and share them with all of us.

Dec 11, 2013, 12:17:00 AM
Anonymous said...

Very nice, i loved it, hopefully one day it will all happen.

Dec 11, 2013, 10:46:00 AM
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