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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

UK residents survey : Prof Shephard/MEBO (until 31/1/21) click to visit survey
click to Read more/less

Prof Elizabeth Shephard is conducting a TMAU fact-finding survey for UK RESIDENTS. She plans to use it to raise awareness with decision-makers, such as perhaps MPs. It closes 31 Jan 21.

who is the survey intended for ?
UK residents who identify with TMAU

Living with TMAU study

We invite you to participate in a research project entitled ‘Living with TMAU’.

click to visit survey

survey full url :
https://meboresearch.co.uk/index.php/living-with-tmau-lwtmau-study/

Participation in the project will involve completion of a short questionnaire, which aims to capture the experiences of those living with the condition. There are two questionnaires.

For individuals with TMAU over the age of 18

For a parent or guardian of a child with TMAU.

The results from the questionnaires will be compiled to produce a report that will be available for you to use, for example, to lobby your MP. The findings will be used to reach out to policy makers in the UK to have TMAU recognised as an invisible disability and to make people aware of what it is like to live with the disorder. The report will be made available on the MEBO, UK website.

To complete either questionnaire you must be over 18 and resident in the UK. The questionnaire responses are anonymous and no personal identifiers will be collected.

The questionnaire closes 11:59 pm (GMT) Sunday 31st January 2021.

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Tuesday, December 10, 2013

Reaching Horizon

What would the day be like, when an effective treatment or a cure is discovered?

Some dare not dream for fear the disillusionment will crush any remnant of wearied strength. Even still, some of us dare to dream, as we believe that an answer may very well be just beyond the horizon. Hope increases as volunteers come forward and carry for us the banner of Raising Awareness, Fundraising, Community Outreach support with strong leadership and participation in the various FaceBook sites and RareConnect, and many more projects. We have the wherewithal to make it work. It's a personal choice.

The following is a poem written by one of our own, Ben Rimmer, as he envisions freedom beyond the horizon. Thank you Ben for sharing this with us.

Awaken every morn-
Alive with smile.
Condition unknown,
Ahead lies trial.


Hourglass empties,
Blissful time ended.
Cavernous despair,
Deeply descended.

Sanities savior-
steadfast denial.
Subsequent solitude,
Imprisoned in domicile.

Condition discovered,
Poor Calibans plight.
Societies pariah,
Incessantly we fight.

Strict regimens,
Fruitless solutions.
Hygienic rituals,
Frequent ablutions.

Wistful lives,
Merely surviving.
A measure of Hope-
Research is reviving.

As darkness pierced,
by sun arisen.
A treatment revealed,
Reaching horizon.

Tears of sorrow,
Of unconscionable pain-
Now tears of rejoice,
Falling globally like rain.

Parades and confetti,
Foods of all kinds.
A day to remember,
Within each of our minds.

Even as darkness arrived,
Beginning the night.
An unknown twinkle of sky,
A new star came alight.

Benjamin Rimmer

2 comments:

Anonymous said...

This is a very good poem. I hope the author will write more on this subject and share them with all of us.

Dec 11, 2013, 12:17:00 AM
Anonymous said...

Very nice, i loved it, hopefully one day it will all happen.

Dec 11, 2013, 10:46:00 AM
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