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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, April 4, 2014

BORC Public Awareness Campaign & Petition

See menu bar: Conditions, Videos, Issues Addressed, Ask Sonya, Information, More

Public Awareness Campaign & Petition

by Lisa Mardis

Post content: In an attempt to contact President Obama, their response to BORC was broad based concerning a request for more funding to research (TMAU) Trimethylaminuria. Now the establishment of a petition has been formulated by BORC with additional request(s) to be presented to The White House. Please take the time to sign. Click the following link and then press the "HERO CALL" Button, then please sign the petition. All I know is to give it a try at best. - Lisa Mardis!campaigns/c1ba5

CONDITIONS: Bromhidrosis, Isovaleric Acidemia, Trimethylaminuria

Misconceptions, Underlying Problems, Sweat Glands, Body Odor or Disease? Treatment, "Body Odor Live From The Clinic"


Addressing Your Child's “Body Odor” Issue
Isolation, & Symptoms of Depression ... Know The Signs
Sings a Child is Being Bullied
Why don't kids ask for help?
Laws That Govern Our Child's Protection
Titles I and V of the Americans with Disabilities Act of 1990 (ADA)
he Family Educational Rights and Privacy Act of 1974 (hereafter, “FERPA.”)
Anti Bullying Act


Supplements, Prescriptions, Cleansers, Shampoos, Soaps & Bar, Laxatives, Feminine Hygiene, Other Products.


Hi all,

Lisa has created a petition which anybody form any country is able to sign. It can be found on her BORC website. This is the message she posted in RareConnect. Change IS possible if we push. Evidence: who would have believed there could be black US president?

Best wishes


It's easy to sign the petition using your username and email address. Simply click on "JOIN NOW," give your User name and email address, Select your condition and medical status, and submit. It's as simple as that! Please join us in moving this effort forward. Each one alone can't fix our problem, but collectively, we will be heard!

We sincerely thank you, Lisa Mardis for the hard work you have put into spearheading this movement!

Best wishes

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A EURORDIS and NORD Member Organization 


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