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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Wednesday, April 2, 2014

DNA Test for TMAU in United States and Europe

GENE TEST

Click on icon
for test information


A list of laboratories in Gene Tests for TRIMETHYLAMINURIA describes the type of test and methods used by various laboratories in Germany, Spain and the United States.

http://www.genetests.org/disorders/?disid=14487
  • TYPES:
    1. Molecular
    2. Biochemical.
  • METHOD:
    1. Sequencing, Capillary
    2. Qualitative Biochemical Analysis
    3. Gentyping (Microarray, Beads, etc.)
    4. Deletion / Duplication / Copy Number
      (Array, MLPA, Q-PCR, etc.)


ORPHANET

Click on icon for information

Orphanet provides a list of labs that perform FMO3 gene sequencing, Molecular diagnosis of TMAU, Biochemical diagnosis of TMAU, Diagnosis of TMAU using Nuclear Magnetic Resonance, (NMR spectrometry) and analysis of trimethylamine in urine, in European countries, such as Austria, France, Germany, Spain, and United Kingdom.


MEBO RESEARCH IS PROUD TO BE
A REGISTERED PATIENT ORGANIZATION OF


ORPHANET
There is no disease so rare
that it does not deserve attention

Orphanet is the reference portal for information on rare diseases and orphan drugs, for all audiences. Orphanet’s aim is to help improve the diagnosis, care and treatment of patients with rare diseases.

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