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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

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TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Friday, July 11, 2014

BDJ Publication, Halitosis: a new definition and classification


Dr. Murat Aydin, DDS, PhD., who has been very helpful to our community, has created a new definition and classification to halitosis that will serve to better diagnose the cause(s) of halitosis. He has published a paper in the British Dental Journal (BDJ) today, "Halitosis: a new definition and classification".

British Dental Journal 217, E1 (2014)
Published online: 11 July 2014 | doi:10.1038/sj.bdj.2014.552


This revolutionary concept will be most helpful to our community in better understanding and managing each sufferer’s true cause of his or her own halitosis, which can be one or more of the following classifications, oral, airway, gastroesophageal, blood-borne, and subjective.

Dr. Aydin has been very active in the international online halitosis community, especially in the Bad Breath Halitosis.com community/. Dr. Aydin wrote a paper for MEBO’s 2013 Annual Meetup and Conference held in Memphis, TN, “How we can understand whether halitosis comes from mouth or breath?,” which describes the origin of Oral Halitosis and Breath Halitosis and the differences of their clinical signs. He has also invited the MEBO community to participate in a halitosis study he was conducting, see the following posts:

Please participate in Halitosis Study
Halitosis Study with MEBO Community by Dr. Murat Aydin, DDS, PhD.
Responses Summary Halitosis & Tonsillectomy

Our congratulations go to Dr. Aydin for his publication and this work in his field. This new article is great. I love it. I highly recommend it to all halitosis sufferers and all experts.

María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.org
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
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