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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Tuesday, July 8, 2014

RareConnect sponsored Webinar Update: Exploratory Breath Study

Menssana Exploratory Breath Study



RareConnect sponsored Webinar

DATE CHANGED FROM: July 11, 2014
NEW DATE: Thursday, JULY 17, 2014
TIME: 2:00pm Eastern Daylight Time (EDT)
See The World Clock - Time Zones

LINK TO ACCESS THE WEBINAR https://eurordis.adobeconnect.com/rare_disease_communities/
Enter as guest, no password required.

Topic of Discussion:
The exploratory breath study and general initiatives of the Menssana Research Team with Michael Phillips MD, FACP, FRCP Founder & CEO Menssana Research and other staff.

Click icon
for blog posts on study

In sticking with MEBO RESEARCH'S MISSION, “to initiate research into rare genetic metabolic diseases, particularly those resulting in systemic, difficult to control body malodor and halitosis, including, but not limited to, Trimethylaminuria”, in mid 2012 MEBO partnered with Dr. Michael Phillips, MD, PACP, Professor of Clinical Medicine at New York Medical College, Valhalla, New York, an expert in breath testing, to offer breath testing to our community - to explore biomarkers for body odor and halitosis. MEBO’s primary role was to facilitate testing with patients to make testing available to communities where there was enough demand. There were many hurdles including significant cost suffered by MEBO in shipping the BCA instrument; however, we are happy to say there were 30 participants that traveled to Chicago, Miami, New York, and London. Each participant received his or her testing results shortly after testing, showing over 200+ compounds. We thank each participant for their tireless efforts in the breath testing collection process. We achieved the minimal amount of patients required for a small study of the aggregate test results...(See original post in this blog.)

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.org
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)


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4 comments:

Anonymous said...

will this be uploaded to youtube later ?

Jul 23, 2014, 5:26:00 AM
Anonymous said...

Is there an offline account of the webinar available for viewing?


Thanks in advance.

Jul 27, 2014, 6:33:00 PM
Maria de la T., Founder and Executive Director, MEBO Research said...

Not yet. I'll look into it.

Aug 4, 2014, 6:53:00 PM
Maria de la T., Founder and Executive Director, MEBO Research said...

Here is a link to Dr. Phillips' webinar sponsored by RareConnect, "TMAU Community Webinar: Biomarkers for Body Odor and Halitosis".

http://youtu.be/5GYecFZR4Eg

Aug 22, 2014, 10:00:00 AM
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