Menssana Exploratory Breath Study
RareConnect sponsored Webinar
DATE CHANGED FROM:
NEW DATE: Thursday, JULY 17, 2014
TIME: 2:00pm Eastern Daylight Time (EDT)
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LINK TO ACCESS THE WEBINAR https://eurordis.adobeconnect.com/rare_disease_communities/
Enter as guest, no password required.
Topic of Discussion:
The exploratory breath study and general initiatives of the Menssana Research Team with Michael Phillips MD, FACP, FRCP Founder & CEO Menssana Research and other staff.
Click icon for blog posts on study |
In sticking with MEBO RESEARCH'S MISSION, “to initiate research into rare genetic metabolic diseases, particularly those resulting in systemic, difficult to control body malodor and halitosis, including, but not limited to, Trimethylaminuria”, in mid 2012 MEBO partnered with Dr. Michael Phillips, MD, PACP, Professor of Clinical Medicine at New York Medical College, Valhalla, New York, an expert in breath testing, to offer breath testing to our community - to explore biomarkers for body odor and halitosis. MEBO’s primary role was to facilitate testing with patients to make testing available to communities where there was enough demand. There were many hurdles including significant cost suffered by MEBO in shipping the BCA instrument; however, we are happy to say there were 30 participants that traveled to Chicago, Miami, New York, and London. Each participant received his or her testing results shortly after testing, showing over 200+ compounds. We thank each participant for their tireless efforts in the breath testing collection process. We achieved the minimal amount of patients required for a small study of the aggregate test results...(See original post in this blog.)
María de la Torre
Founder and Executive Director
A Public Charity
maria.delatorre@meboresearch.org
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)
4 comments:
will this be uploaded to youtube later ?
Is there an offline account of the webinar available for viewing?
Thanks in advance.
Not yet. I'll look into it.
Here is a link to Dr. Phillips' webinar sponsored by RareConnect, "TMAU Community Webinar: Biomarkers for Body Odor and Halitosis".
http://youtu.be/5GYecFZR4Eg