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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Monday, March 2, 2015

Research funded by NORD Fund to be published this year

A previous rareconnect webinar with Monell
Research funded by NORD Fund to be published this year
The funding was raised by the community
Funding was around $30K
Grant was won by The Monell Chemical Senses Center

Regular readers will recall that the community raised over $30K to activate the NORD Grant into trimethylaminuria (TMAU). A particular campaign by some community members using the temporary webite RRR (researching for research resources) was behind most of the money raised.

The grant was won by the Monell Chemical Senses Center in 2011 (one of 6 bids) and research was completed in 2014. We understand that the research paper has been completed and put forward for publishing in a medical journal. However this could take a while and so we cannot say when it will be published other than being hopeful it will be anytime in 2015.

Well done to the community for making this research happen.

funding target is reached (Feb 2011)
Nord Grant awarded to Monell (2012)


Anonymous said...

Is this the same research as the UK Trinzyme research?

Jul 3, 2015, 7:57:00 AM
blogcontributor2 said...

No it was a small 'budget' study done by Monell and funded by the community via NORD.

I think it will mainly be a small 'statistics' study to add some more 'statistical observation' about TMAU (via test results). I don't think it was reearch for a cure or therapy of any kind.

Jul 3, 2015, 8:05:00 AM
Anonymous said...

Wasn't it to be a study on the TMAU genome that would hopefully make research for a cure easier to accomplish in the future?

Jul 7, 2015, 4:41:00 PM
Anonymous said...

I assumed from the below that it will help the sufferers.

'Monnell aims to study the genes behind the disorder TMAU – work scientists believe could lead to new developments in helping control the symptoms of Trimethylaminuria, also known as TMAU.'

Jul 9, 2015, 5:58:00 PM
blogcontributor2 said...

We got a reply from them about the current situation. It seems it wasn't accepted by the first genetic journal for publishment and they are now trying to get accepted by another journal. This seems to be a typical pattern with studies trying to get published (perhaps moreso small-scale studies)

I wouldnt expect too much form the study as it was a very 'small' study in relative terms. I'm sure it is of some use to understanding TMAU.

Jul 9, 2015, 6:08:00 PM
Henry said...

Why is there so much interest in the genetics side of TMAU as opposed to Gut flora.

I saw a video of a woman who said her child didn't have symptoms until she started weening the baby. Is there any research into milk. If the necessary enzymes and bacteria are present in human milk then may they are also present in unpasturised cows milk.

Jul 31, 2015, 6:50:00 AM
Anonymous said...

Any update on this?

Apr 18, 2016, 8:55:00 PM
blogcontributor2 said...

It's a complex story. Usually research papers are published via peer journals. The impression is it wasn't accepted by the first 2 journals but now it being put to another journal. For this new journal an impression is the chances are hopeful it will be published in this one.

Apr 19, 2016, 7:39:00 AM
Anonymous said...

I hope so. Please do let us know if and when they do.

Apr 20, 2016, 7:38:00 PM
Anonymous said...

Any news on this?

Sep 4, 2016, 9:19:00 PM
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