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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, March 12, 2015

TMAU movie gets movie screenings this week and is available on most film download sites

'The Boy Who Smells Like Fish' movie now re titled and re-marketed as 'Treading Water'

To be screened in some USA cities this week

Now available to watch no most major movie streaming sites (eg iTunes, Amazon, Google Play, Cable, Satellite, Xbox, PlayStation and VUDU)

The movie 'The Boy Who Smells Like Fish' has been retitled 'Treading Water' and is now available to watch on most movie streaming sites (perhaps USA only currently) such as Itunes, Amazon, Google Play

Itunes link       
Amazon : link      
Google Play : link
check for availability with other streaming sites

Movie to be screened at some USA cities this week 

The retitled movie (now 'Treading Water') will be shown at the following USA cinemas from 13th March

Cinema Village (New York, NY)
Laemmle Music Hall (Los Angeles, CA)
PFS Roxy (Philadelphia, PA)
Plaza Theatre (Atlanta, GA)
Harkins Shea 14 (Phoenix, AZ )
Harkins Northfield (Denver, CO)
4-Star Theater (San Francisco, CA)
Studio Movie Grill (Dallas, TX)
Sundance Cinema (Houston, TX)
Sundance Cinema (Seattle, WA)


María de la Torre
Founder and Executive Director

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Anonymous said...

aww.. i missed it already on the 13th =(

Mar 17, 2015, 7:52:00 AM
blogcontributor2 said...

I think it's on most of those cinema's until Thursday night

Mar 17, 2015, 8:15:00 AM
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