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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, May 20, 2015

Temporarily Suspension of MEBO TMAU Test Program


A 501(c)3 Public Charity, USA
A Not For Profit LTD Company, England and Wales

I cannot ensure that the urine samples will be safely handled under these temporary conditions during construction.
The MEBO TMAU Test Program will be temporarily suspended effective June 1, 2015 for 3 to 4 months due to construction in my house, from where I work. This construction requires that I move to another location during this period of time, and I cannot ensure that the urine samples will be safely handled under these temporary conditions during construction.

I need to receive all samples for Batch #15 by May 29th. I already have seven (7) samples in my possession, and therefore need to get 8 more to complete 15 for Batch #15. Once I have received samples from 15 persons, I will be able to ship the batch to the lab before the program is suspended. Anyone who has purchased a kit for Batch #15 and has it in their possession needs to send the samples to me by May 29th or wait until the program resumes sometime in October or November.

Anyone who has filled out the online Requisition Form, but has not paid for the test, please note that your application will remain on record, but you will need to notify me via email of your interest after the program resumes.

If you have any questions or concerns regarding this matter, please email me at,

Thank you for your understanding and support.


María de la Torre
Founder and Executive Director

A Public Charity
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)

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