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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, June 13, 2015

Our beloved friend and pioneer TMAU campaigner Cheryl Fields passed away on June 10

Cheryl Fields / DrStillStanding 
It is with great sadness we hear that MEBO Community Outreach Director Cheryl Fields passed away on June 10. She was a much beloved member of the TMAU community, probably the biggest campaigner and pioneer of TMAU awareness, and our greatest counselor, giving her phone number online for many years to support all in need.

Her role as a pioneer of TMAU awareness cannot be underestimated. 10-15 years ago when those with metabolic malodor were internet nomads ending up on the few 'normal' body odor/halitosis forums there were, she was giving out her name, address and phone number. At that time perhaps only Cheryl and Arun were known names to the online community. Every post was done in an uplifting selfless manner. She attended any TMAU awareness campaigns she could, including the MEBO meetups and a visit to Washington, as well as appearing on TV and newspapers.

She is now at peace with her beloved daughter.

In this 2012 MEBO video funded by the community, we see her as she always was, supporting the community and  educating all about TMAU. She will be greatly missed but never forgotten.

A quote from Cheryl's last Facebook post

 Keep your heads up and remember there is no other option than to be POSITIVE, UPBEAT, & FAITHFUL! smile emoticon

Cheryl Fields Facebook Page : link


Anonymous said...

Oh my gosh, I am so sad to hear this. She definitely was a big force in those early days. I remember talking to her through email many times.
She was always so positive and uplifting.

She will be missed.

Jun 13, 2015, 11:03:00 AM
Anonymous said...

It's really sad to hear that Cheryl is no longer with us. She was very active in the TMAU yahoo groups, she was very supportive of other fellow sufferer by giving her phone number and email, I'm sure she helped a lot of people, may God bless her soul.

Jun 13, 2015, 1:06:00 PM
Unknown said...

Such sad news. I have watched her video multiple times.

Jun 13, 2015, 1:09:00 PM
Unknown said...

My condolences to you Maria and her family. I never had the pleasure to interact with Cheryl. She was very positive and knowledgable in the TMAU community. RIP Cheryl>

Leonor Morales

Jun 13, 2015, 2:44:00 PM
Unknown said...

My condolences to Maria and Cheryl's family. I never had the pleasure to interact with Cheryl, she was very knowledgable and supportive in the TMAU community. RIP Cheryl>

Leonor Morales

Jun 13, 2015, 2:48:00 PM
Jose Lopez said...

Cheryl was a truly inspirational person. RIP

Jun 13, 2015, 6:33:00 PM
Anonymous said...

This is just sad :( . Rip

Jun 13, 2015, 8:04:00 PM
Anonymous said...

so sorry to hear this, she was a very phenomanal woman, she stuck her neck out for everyone that really needed her, she will be greatly missed, my condolences to the family...may u forever R.I.P. CHERYL.

Jun 14, 2015, 11:11:00 AM
Anonymous said...

Cheryl was an exceptional person. She helped me so much when I first realized that I might have TMAU. I know she was there for many people with this disorder. I am very thankful to have known such a wonderful person. She lifted my spirits many times. She will be greatly missed. RIP Cheryl.

Jun 17, 2015, 8:06:00 PM
Unknown said...

I pray to God ... may her soul rest in peace... Ameen

Jun 26, 2015, 12:06:00 PM
Unknown said...

I pray to God... May her soul rest in peace

Jun 26, 2015, 12:13:00 PM
Silja said...

I remember her from when I used to be on the online messageboards 10-12 years ago. I always wondered where she got all her strength from, such an inspiration. My condolences goes out to her family and friends.

Jun 9, 2016, 9:45:00 AM
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