VICTORY: NORD's patient assistance free drug program

In the fight against rare diseases, YOU are a hero!
Parents Thank NORD Organization Members for Saving Daughter’s Life

A MESSAGE FROM: Baby Jenna's Mom
Through NORD

In the fight against rare diseases, YOU are a hero!

Dear Friend,

This year you ensured that patients and families were not alone in battling their rare diseases. You joined the fight and helped them to receive an accurate diagnosis, fund research, connect with experts, find clinical trials and access new treatment. Your donation made it all possible. You did this...
THE IMPACT YOU HAD


Learn more about the impact that you made possible;


JENNA'S STORY

Through NORD's patient assistance free drug program, we provided life-saving medication to baby Jenna.

"We just made a donation to NORD. Your organization helped save our daughter's life when she was a baby." - Jenna's Mom
Read More About Jenna's Story >

Let's keep fighting!
DONATE NOW

Alone we are rare. Together we are strong. (TM)

Today, our MEBO community helped Jenna, and perhaps tomorrow, the NORD and EURORDIS organization members may team up to help the MEBO community. I love their logo, "Alone we are rare. Together we are strong." Thanks everyone for your help.

María


María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
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A EURORDIS and NORD Member Organization