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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Monday, May 16, 2016

UPDATE: MEBO TMAU Test Program temporary suspension

MEBO International 

TMAU Urine Test Program

Click for Requisition Form

In an effort to make trimethylaminuria testing as accessible and low-cost as possible to sufferers around the world, MEBO Research offers a Trimethylaminuria (TMAU) urine test to the international public. The MEBO TMAU urine test identifies whether the results are indicative of Primary or Secondary TMAU. The cost of the test is $150 plus round trip shipping cost. Unfortunately, some countries have not allowed payments from their national banks to Non-Profit Organizations (NPOs) or charities abroad, and others simply don't allow exporting body fluid samples from their country, so therefore, there are some restrictions as to which countries MEBO can ship the urine test to.

At this time, the MEBO TMAU test program has been temporarily suspended and may resume in late June or early July 2016 due to construction delays. The electrical power must be turned off during construction, and consequently, it will not be possible to safely store samples. A notice will be posted in this blog as soon as the program is reinstated. Please excuse any inconvenience this may cause.

If interested in commencing the testing process, please fill out the online requisition form found at the MEBO website. Once I receive the application information, I will put you on the wait list and send you an email explanation of the testing process. Currently, the wait list has 235 applicants who are waiting to take the test. Since it is so long, I will first begin with the domestic (US) requests that are easier to set up and faster in the shipping process, and then I will work on the international requests.


María de la Torre
Founder and Executive Director

A Public Charity
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