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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, May 16, 2016

UPDATE: MEBO TMAU Test Program temporary suspension

MEBO International 

TMAU Urine Test Program

Click for Requisition Form

In an effort to make trimethylaminuria testing as accessible and low-cost as possible to sufferers around the world, MEBO Research offers a Trimethylaminuria (TMAU) urine test to the international public. The MEBO TMAU urine test identifies whether the results are indicative of Primary or Secondary TMAU. The cost of the test is $150 plus round trip shipping cost. Unfortunately, some countries have not allowed payments from their national banks to Non-Profit Organizations (NPOs) or charities abroad, and others simply don't allow exporting body fluid samples from their country, so therefore, there are some restrictions as to which countries MEBO can ship the urine test to.

At this time, the MEBO TMAU test program has been temporarily suspended and may resume in late June or early July 2016 due to construction delays. The electrical power must be turned off during construction, and consequently, it will not be possible to safely store samples. A notice will be posted in this blog as soon as the program is reinstated. Please excuse any inconvenience this may cause.

If interested in commencing the testing process, please fill out the online requisition form found at the MEBO website. Once I receive the application information, I will put you on the wait list and send you an email explanation of the testing process. Currently, the wait list has 235 applicants who are waiting to take the test. Since it is so long, I will first begin with the domestic (US) requests that are easier to set up and faster in the shipping process, and then I will work on the international requests.


María de la Torre
Founder and Executive Director

A Public Charity
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