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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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NORD Member Organization
See RareConnect

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London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more
more details : karen.james@meboresearch.org

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Monday, May 16, 2016

UPDATE: MEBO TMAU Test Program temporary suspension

MEBO International 

TMAU Urine Test Program


Click for Requisition Form

In an effort to make trimethylaminuria testing as accessible and low-cost as possible to sufferers around the world, MEBO Research offers a Trimethylaminuria (TMAU) urine test to the international public. The MEBO TMAU urine test identifies whether the results are indicative of Primary or Secondary TMAU. The cost of the test is $150 plus round trip shipping cost. Unfortunately, some countries have not allowed payments from their national banks to Non-Profit Organizations (NPOs) or charities abroad, and others simply don't allow exporting body fluid samples from their country, so therefore, there are some restrictions as to which countries MEBO can ship the urine test to.

At this time, the MEBO TMAU test program has been temporarily suspended and may resume in late June or early July 2016 due to construction delays. The electrical power must be turned off during construction, and consequently, it will not be possible to safely store samples. A notice will be posted in this blog as soon as the program is reinstated. Please excuse any inconvenience this may cause.

If interested in commencing the testing process, please fill out the online requisition form found at the MEBO website. Once I receive the application information, I will put you on the wait list and send you an email explanation of the testing process. Currently, the wait list has 235 applicants who are waiting to take the test. Since it is so long, I will first begin with the domestic (US) requests that are easier to set up and faster in the shipping process, and then I will work on the international requests.

María


María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
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A EURORDIS and NORD Member Organization

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