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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, March 29, 2017

Presentation Topics MEBO Conference 2017

The Betsy South Beach
I hope to see many of you at the MEBO Annual Meetup/Conference 2017 this coming Friday at the,

The Betsy South Beach
1440 Ocean Drive
Miami Beach, Fl 33139
866 79-BETSY (866 782 3879)

March 31, 2017
8:00 p.m. to 11 p.m.
In hotel Library
Desert, coffee and tea will be served

The following are the Presentation Topics for the conference:
  1. Professor Elizabeth Shephard, Ph.D., has done a video presentation on "Gut microbiome and diet." It covers a significant amount of information, such as,
    • Explains what is microbiome and where found on our bodies,
    • Its function: Feeds us, forms us, and protects us.
    • How do we acquire a microbiome?
    • Primary TMAU - FMO3, Diet and microbiome,
    • Multiple microbiome-mediated pathways can lead to TMA production,
    • Fish diet
    MEBO and Dr. Wishart and his staff will hold a conference call to determine the direction we should take with the study as we move forward.
  2. RESULTS of The MEBO Metabolomic Profiling Pilot Study, NCT02683876, registered with the U.S. Clinical, Dr Gabashvilli is the registered U.S. Principal Investigator of this study in collaboration with the other registered Principal Investigator, David Wishart, Ph.D., and his staff at the Metabolomics Innovation Center (TMIC) of the University of Alberta, in Edmonton, Canada.

    The great news is that...the study will remain live.
    Thankfully, Dr. David Wishart's Metabolomic Innovation Centre at the University of Alberta, Canada, has given us the results of the pilot study of the MEBO Metabolomic Study on March 24th, exactly 7 days prior to the conference. Consequently, MEBO's Scientific Director is still working ardently on interpreting the results and creating a presentation for us of these results.

    The great news is that Dr. Wishart recommends that we need to do other assays to find out any meaningful observation. After I return from the meetup/conference and cruise, MEBO and Dr. Wishart and his staff will hold a conference call to determine the direction we should take with the study as we move forward. It is now expected that the study will remain live.
  3. "Metabolic pathway simulations, Apocrine Bromhidrosis compared to Trimethylaminuria, The new support of research by high throughput simulations backed by large enzyme databases" Video presentation.

    Topics of this presentation:
    1. Fecal (indole) breath and body odor and it's recommended supplementation and diet,
    2. Apocrine and eccrine sweat glands metabolic disease in Bromhidrosis,
      • Discussions on isovaleric acid and amino acid leucine in eccrine bromhidrosis,
      • Thyroid functions with and without elevated TSH and recommended supplementation and diet.
  4. This very interesting presentation raises question on whether TMAU2 to TMAU1 relation pattern could be transferred to the Bromhidrosis pattern as well.


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