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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO Private Facebook Group
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or contact
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BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more
more details : karen.james@meboresearch.org

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Saturday, April 22, 2017

rareconnect TMAU Webinar : Dr Yiran Guo




TMAU Webinar. 3 April 2017.
Dr Yiran Guo.
Geneticist, Children's Hosp Philadelphia (CHOP).

About :
The community funded TMAU study involving 10 TMAU1 volunteers. DNA testing them for FMO3 and whole EXOME sequencing to look for other possible problem genes.

Conclusion :
TMAU may not be only caused by FMO3 faults.

Points of interest :
Dr Guo involved with a 'CHOP' rare-disorder DNA research project that includes TMAU (RD1000, no website).
Wants another 100 samples to learn more from the TMAU research. Probably using whole exome sequencing.

link to paper : impaired TMA and WES (paper 2017)

Webinar platform and hosting (Marta) provided by rareconnect.org

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A EURORDIS and NORD Member Organization

4 comments:

Anonymous said...

WHY HAVEN'T WE HEARD ANYTHING BACK FROM PROCTOR AND GAMBLE ABOUT THE TMAU STUDY THAT THEY ARE WORKING ON WITH THE DMB PILL, I MEAN, THEY'VE BEEN WORKING ON THIS FOR QUITE SOME TIME NOW, AND NOTHING HAS BEEN TALKED ABOUT AS OF YET, I MEAN, SUFFERERS HAS THE RIGHT TO KNOW WHAT THEY HAVE FOUND OR DISCOVERED SO FAR, AND THEY ARE JUST KEEPING EVERYONE IN THE DARK ABOUT THE RESEARCH,AND EVERY SUFFERER THAT I'VE BEEN IN CONTACT WITH ARE GETTING FRUSTRATED BECAUSE OF IT.

Apr 24, 2017, 3:07:00 PM
Anonymous said...

You do know that research you're referring to is for the heart disease patients and yes it may help the tmau sufferers but technically speaking they don't need to update the tmau sufferers because they don't owe it to us. But, if you're referring to the UK tmau research project then you're right we should be more updated that way maybe we could help out with finding grants or something.

Apr 24, 2017, 8:19:00 PM
Anonymous said...

I was told scientists are working on a TMA blocker pill. Would this be similar to statins? That block production of cholesterol in the liver? So this would block TMA production in the intestines I guess. The drug company that invents this pill first is going to be damn rich so plz get going!!!!!

Apr 27, 2017, 2:56:00 PM
Anonymous said...

If you type tmao on Google search and click on news tab there's new updates on choline.

Apr 28, 2017, 3:10:00 PM
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