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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, June 2, 2018

'smelly' passenger removed from plane : Karen writes

A Transavia airways passenger was removed from a plane due to complaints about his 'malodor'.
The plane diverted to remove him.
The story made international headlines.

Here is is in the UK Daily Mail : Smelly passenger removed from flight

It's not known if his malodor was metabolic caused, or a  surface issue.
If it was metabolic, sadly the opportunity to raise awareness of METABOLIC MALODOR is not furthered in this article, although trimethylaminuria was mentioned in the comments, which some might see.

Excerpt from article

An airplane full of tourists was forced to divert after a passenger's foul-smelling body odour reportedly caused those around him to vomit and faint.
The Transavia Boeing 737 took off from Schiphol Airport in the Netherlands for Gran Canaria, but instead it touched down in Faro, Portugal.
At one point, flight crew reportedly tried to quarantine the 'unwashed' man in a toilet before the pilots decided to divert the flight.  
MEBO's Karen James feels strongly about the treatment in such cases.
Here is a message Karen sent in her recent email newsletter.

Another horrific discriminatory incident on an aeroplane. Please take the time to contact some airlines. I admit it is quite difficult to get email addresses for most of them, but please try. I have included a few contacts below after a very long time searching.

I also suggest that we purchase bracelets from IDA. If we can't control our odours, then we must protect ourselves from discrimination when travelling on the grounds of invisible disability.

please use my sample e-mail message at the end of this message if you wish, and you can distribute this info on secret facebook groups etc.



I would like to request that air stewards and Airways staff are trained in being aware of invisible disabilities including incurable metabolic malodour spectrum disorders such as Trimethylaminuria (, which results in the sufferer emitting a pungent odour which is NOT connected to personal hygiene. In light of the discriminatory, ignorant and insensitive actions of United Airlines,
and Transavia Airlines,
our community is very worried that travelling with this condition could result in trauma and humiliation. Could you please ensure that sensitive treatment of metabolic body odour sufferers is included in your customer service inclusion training and policy.


Transavia:  WhatsApp: +31613533850.

Other possible actions

Write to local national politician about it
USA : Senator, congressperson)

In comments, mention TMAU in the top comment thread
daily mail top comment

In common, green arrow the highest ranking comment mentioning TMAU
highest ranking TMAU comment

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