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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, November 29, 2018

Publication uBiome Grant Awarded to MEBO

uBiome Awards Grant to MEBO Research, a Public Charity, to Study the Dynamic of Gut Microbiota in Idiopathic Malodor Production

Click on icon to see article

A press release was published today about the nearly $500,000 worth of microbiome research grant awarded to MEBO by uBiome for the "Microbial Basis of Systemic Malodor and PATM Conditions (PATM)", Identifier: NCT03582826.

The aim of this study is to support the gathering of comprehensive data to assess the correlation of gut microbiome to physical and psycho-social health conditions.

“This study is exciting because it advances our understanding of metabolic dysfunction and its correlation to rare disease,” said Jessica Richman, PhD, co-founder and CEO of uBiome. “We are honored to partner with MEBO Research to support this novel study on this understudied patient population.”

Dr. Irene Gabashvili, PhD, is Scientific Director of MEBO Research and Principal Investigator. A Stanford Medicine and HP Labs alumna, Dr. Gabashvili has authored numerous publications and has led several diverse biomedical and software development projects. In addition, as founder of Aurametrix, Inc., she developed a health-management platform to alleviate metabolic disorders and maximize health and wellbeing.
"We are very excited to partner with uBiome for this joint project. Part of MEBO’s mission as a charity is to pursue studies on gut microbiota to understand gut health and the microbial communities that produce malodor symptoms. uBiome is an innovator in microbiome analysis.” - Maria de la Torre"

This very generous grant allows for MEBO to include participants, who experience similar physical symptoms with psycho-social health conditions, from 6 continents of the world, including Africa, Europe, Asia, North America, South America, and Australia. Our profound gratitude goes out to the uBiome team for their very kind and professional support throughout this process.

Latest posts about the study :
(Scroll down to see all posts)


María de la Torre
Founder and Executive Director

A Public Charity
MEBO's Blog (English)
El Blog de MEBO (español)

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