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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Thursday, November 29, 2018

Publication uBiome Grant Awarded to MEBO

uBiome Awards Grant to MEBO Research, a Public Charity, to Study the Dynamic of Gut Microbiota in Idiopathic Malodor Production

Click on icon to see article

A press release was published today about the nearly $500,000 worth of microbiome research grant awarded to MEBO by uBiome for the "Microbial Basis of Systemic Malodor and PATM Conditions (PATM)", ClinicalTrials.gov Identifier: NCT03582826.

The aim of this study is to support the gathering of comprehensive data to assess the correlation of gut microbiome to physical and psycho-social health conditions.

“This study is exciting because it advances our understanding of metabolic dysfunction and its correlation to rare disease,” said Jessica Richman, PhD, co-founder and CEO of uBiome. “We are honored to partner with MEBO Research to support this novel study on this understudied patient population.”

Dr. Irene Gabashvili, PhD, is Scientific Director of MEBO Research and Principal Investigator. A Stanford Medicine and HP Labs alumna, Dr. Gabashvili has authored numerous publications and has led several diverse biomedical and software development projects. In addition, as founder of Aurametrix, Inc., she developed a health-management platform to alleviate metabolic disorders and maximize health and wellbeing.
"We are very excited to partner with uBiome for this joint project. Part of MEBO’s mission as a charity is to pursue studies on gut microbiota to understand gut health and the microbial communities that produce malodor symptoms. uBiome is an innovator in microbiome analysis.” - Maria de la Torre"

This very generous grant allows for MEBO to include participants, who experience similar physical symptoms with psycho-social health conditions, from 6 continents of the world, including Africa, Europe, Asia, North America, South America, and Australia. Our profound gratitude goes out to the uBiome team for their very kind and professional support throughout this process.

Latest posts about the study :
Link
(Scroll down to see all posts)


María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)



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A EURORDIS and NORD Member Organization

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