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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Wednesday, April 24, 2019

uBiome one time 50% special limited offer

EARTH DAY CELEBRATION
EXPLORE YOUR MICROBIOME


UBiome is now offering a one-time 50% discount off the Gut Explorer™ kit for the next 3 days, through Saturday, April 27, 2019 in celebration of Earth Day. This means that the Gut Explorer test will only cost you $44.50 if purchased by April 27th!

uBiome Gut Explorer test offers actionable tips based on the latest research and personalized stories focused on unique aspects of your wellness including:
  • Healthy weight
  • Inflammation
  • Gluten digestion
  • Lactose digestion
  • Sleep quality
  • Metabolism
  • TMA
  • ...and many more!

HOW TO BUY THE GUT EXPLORER TEST AT A DISCOUNT:


Enter the code EXPLORE50 at checkout today through Saturday, April 27th at 11:59 pm PST to get the deal. To purchase, visit the uBiome website and choose Gut Kit, click on One-time purchase, add to cart, and use code EXPLORE50.

UBIOME AFFILIATE PROGRAM:


After April 27th, uBiome will offer MEBO members a 10% discount off the Gut Explorer™ kit using code MEBO.

In addition, uBiome will donate 20% of the value of your test to MEBO if you have used the code MEBO to get your 10% discount! This is one way you will be able to support the MEBO Mission while testing without any additional cost to you. It's a win-win situation for sufferers and for MEBO.


María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)



SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays
at no extra cost to you.
MEBO gets small commission from Amazon.


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A EURORDIS and NORD Member Organization

1 comments:

Anonymous said...

We have a new product in Italy, it is called "Taurisolo, and it inhibit the production of TMA in the gut. It was developed at the beginning of the 2019 for incident cardiovascular events, but probably could be helpful for TMAU sufferers.

This is the link

https://www.researchgate.net/publication/330315303_Effects_of_Grape_Pomace_Polyphenolic_Extract_TaurisoloR_in_Reducing_TMAO_Serum_Levels_in_Humans_Preliminary_Results_from_a_Randomized_Placebo-Controlled_Cross-Over_Study

Apr 28, 2019, 12:25:00 PM
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