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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
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Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Saturday, June 15, 2019

Reference video on 3 enzymes that cause METABOLIC MALODOR

Youtube Channel : SciShow
Video : 3 diseases that make you stink

This popular science youtube channel (not worth looking at other than this video) talks about 3 ENZYME DISORDERS that can make you smell.

enzyme FMO3

2. ISOVALERIC ACIDEMIA  (sweaty feet smell syndrome)
enzyme : isovaleryl-CoA dehydrogenase (IVD Gene)

3 HYPERMETHIONEMIA (sulfury smell ?)
enzyme : a few enzymes in the methionine cycle ? (link)

The last 2 can be fatal, so are looked at for 'severe' types who may die due to the disorder.
No-one tests the last 2 just for 'smelly' people.

If a Dr was well trained they would likely be aware of these 3 disorders.
Whether they are aware they can cause smell only is debatable.

The video seems to be sponsored by 23andme

Longterm aims :
Metabolic BO and Halitosis research and treatment center.

Possible actions :
Write to politician to get FMO3 added to newborn screen program like the other 2 (1% chance).

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Anonymous said...

And how is called disease of smell resulted from hydrogen/sulphide and what disfunctional gene is responsible for B.B. resulted by this?

Jun 19, 2019, 7:27:00 PM
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