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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, June 15, 2019

Reference video on 3 enzymes that cause METABOLIC MALODOR

Youtube Channel : SciShow
Video : 3 diseases that make you stink

This popular science youtube channel (not worth looking at other than this video) talks about 3 ENZYME DISORDERS that can make you smell.

enzyme FMO3

2. ISOVALERIC ACIDEMIA  (sweaty feet smell syndrome)
enzyme : isovaleryl-CoA dehydrogenase (IVD Gene)

3 HYPERMETHIONEMIA (sulfury smell ?)
enzyme : a few enzymes in the methionine cycle ? (link)

The last 2 can be fatal, so are looked at for 'severe' types who may die due to the disorder.
No-one tests the last 2 just for 'smelly' people.

If a Dr was well trained they would likely be aware of these 3 disorders.
Whether they are aware they can cause smell only is debatable.

The video seems to be sponsored by 23andme

Longterm aims :
Metabolic BO and Halitosis research and treatment center.

Possible actions :
Write to politician to get FMO3 added to newborn screen program like the other 2 (1% chance).

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Anonymous said...

And how is called disease of smell resulted from hydrogen/sulphide and what disfunctional gene is responsible for B.B. resulted by this?

Jun 19, 2019, 7:27:00 PM
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