The MEBO Blog: MEBO London Meetup September 2019

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Denver TMAU Test Lab survey click here

click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Thursday, August 8, 2019

MEBO London Meetup September 2019

LONDON MEET UP ON
7TH SEPTEMBER 2019

Let's meet up before the summer ends!
Everyone, as always, is very welcome.

SATURDAY 7TH SEPTEMBER 2019

from 11am onwards

AT ROYAL FESTIVAL HALL

SOUTH BANK LONDON

Belvedere Rd

Lambeth, London SE1

We will be at the seating area with tables in front of the foyer. The foyer and outdoor seating area are next to the fountains shown in the picture on the website:

Click on pic for venue info

https://www.southbankcentre.co.uk/venues/royal-festival-hall

Please call 07505 590972 if you can't find us, and be patient if you can't get through immediately.

Contact email : karen.james@meboresearch.org

Karen James
Public Relations Director
Raising Awareness Activist

A Public Charity
karen.james@meboresearch.org
www.meboresearch.org
MEBO's Blog (English)

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