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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Thursday, December 17, 2020

NEW MEBO UK EXECUTIVE DIRECTOR

NEW MEBO UK EXECUTIVE DIRECTOR


Due to my personal health reasons, I am very happy to announce that Cole Flaherty (click on link, scroll down & click on 'Older Posts') has accepted the position of MEBO Research UK Executive Director, effective immediately. MEBO Research (UK) was founded on February 5, 2009, registered in England and Wales as a Not-For-Profit, Limited by Guarantee Company.

In addition, I will now assume the position of Assistant to the Executive Director for MEBO UK and I will remain the Executive Director of the MEBO Research, Inc., 501(c)3 Public Charity registered in 2010 in the State of Florida, U.S. Not only is Cole's leadership in MEBO UK helpful to me personally, but I am confident that his competency, education and drive will propel our community further into research possibilities. I will do everything in my power to support Cole's endeavors moving forward, and I encourage everyone in our community to offer him assistance and support.
Click on icon
and scroll down

Cole has a degree in Genetics and is continuing his studies in the medical field. He is working closely with Professor Elizabeth Shephard, PhD (click on link, scroll down & click on 'Older Posts'), on a new TMAU study in the UK, ‘Living with TMAU’ that will be launched with an online survey on 17 December 2020 at 9:00 a.m./UK time. It is important that only people living in the UK complete the questionnaire, since participants of this study must reside in the UK.

For more information on Cole's vision for MEBO UK, see his posts in this blog. Scroll down to see all posts.

GET INVOLVED IN THE STUDY IF YOU LIVE IN THE UK


For more information about MEBO’s Mission and Prof. Shephard’s study, please refer to the website created by Cole for MEBO.



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Please join me in congratulating Cole in his new role in our community, and feel free to offer him all the support he needs and more. Volunteer work is always welcome!

María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)



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A EURORDIS and NORD Member Organization

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