tag:blogger.com,1999:blog-3652036210877702504.post1549184711932710468..comments2024-03-26T08:33:06.926-04:00Comments on The MEBO Blog: Rare Disease Day USA February 29, 2012Unknownnoreply@blogger.comBlogger2125tag:blogger.com,1999:blog-3652036210877702504.post-86114387786592105902012-02-22T12:33:56.230-05:002012-02-22T12:33:56.230-05:00Mary,
How tragic that you have lost your child to ...Mary,<br />How tragic that you have lost your child to a rare genetic disease. I hope you find some solace in knowing that we are all united together to stand as a strong entity to promote research and find cures, one at a time if necessary.<br />MaríaMaria de la Torrehttps://www.blogger.com/profile/17315221071837223412noreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-38443355417634584782012-02-22T12:22:00.827-05:002012-02-22T12:22:00.827-05:00Thank you for supporting Rare Disease Day! My chi...Thank you for supporting Rare Disease Day! My child passed away from a rare genetic disease called early-onset LAL deficiency (also known as Wolman disease) in 2009. Rare Disease Day means so much to the millions of people and families affected by the approximately 7,000 rare diseases. Thanks again! Mary http://www.lalsolace.orgMary at LaL Solacehttps://www.blogger.com/profile/11796564520009879707noreply@blogger.com