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MEBO Research
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PROGRAM IS PERMANENTLY SUSPENDED AS OF 2 MAY 2017

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DATE: 2 MAY 2017
Currently on : PROGRAM IS TEMPORARILY SUSPENDED

Samples analyzed since June 2012 :
352
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
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Latest click here (26 oct) :
17 samples returned


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Blog Archive

Friday, March 31, 2017

Updates on Clinical Trials NCT02683876 and NCT02692495

Irene Gabashvili, Director of MEBO Research
MEBO Metabolomic Profiling Study
Updates on Clinical Trials NCT02683876 and NCT02692495


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A EURORDIS and NORD Member Organization

5 comments:

Anonymous said...

Thank you. Very interesting study and looking forward to the next phase. Exscuse my understanding but how do we find a cure once we discover all the compounds?

Apr 3, 2017, 6:35:00 PM
Irene Gabashvili said...

we need to define different sub-types of this condition as different treatment approaches will be needed.

Apr 8, 2017, 10:45:00 PM
Anonymous said...

Thank you Irene. Your reply has given me hope. We really appreciate all the work you do for us.

Apr 9, 2017, 8:42:00 AM
Unknown said...

Thank you Irene for all your work. It looks like you guys are the only ones that are looking into this issue. Two questions:

I understand amino acids can break down and cause these odorous compounds but do you have a theory on why the majority of suffers respond negatively to sugar? Somrthing like a fruit juice causes an instant reaction for me.

I see that the majority of participants were low in certain aminos, is this because a faulty pathway is not utilizing the amino acids properly and therefore being released as odorous compounds instead of being properly utilized by the body?

Apr 16, 2017, 3:18:00 PM
blogcontributor2 said...

I would suggest the best way to comment to Irene is via her youtube channel (Aurametrix)

Apr 18, 2017, 3:21:00 PM
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