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MEBO Karen
at UK Findacure conf 2020

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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Full details :
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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Thursday, May 21, 2020

new TMAU site and social media : TMAYOU

TMAYOU youtube channel : subscribe

Someone has started a new TMAU AWARENESS website and social media channels.
We are all very grateful. Metabolic Malodor is such a taboo subject.

TMAYOU website

TMAYOU Twitter

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A EURORDIS and NORD Member Organization

Monday, May 18, 2020

anti-TMA pill could be a year or 2 ?

Podcast March 2020
Dr Stanley Hazen of Cleveland Clinic discusses the TMAO-CVD theory

The Hazen Cleveland lab team put forward the TMAO-Hypothesis in 2011, and have been looking at ways to inhibit trimethylamine formation in the gut (as well as other things).

In this March podcast, Dr Hazen says (quote ... roughly) :
1. DMB inhibited TMA formation in gut by about 98% (they are using other stronger inhibitors now it seems).
2. Human trials will begin in 2020.

Dr Hazen also says (something like)
"now whether it will be commercially available this year, I don't know".

From that you could wonder that the Procter & Gamble anti-TMA pill might be available to buy in the near future ... say a year or 2 or 3 ?
It will be available to buy over-the-counter.

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A EURORDIS and NORD Member Organization

Wednesday, May 13, 2020

Daniel talks TMAU on anosmia podcast

Daniel is one of our greatest awareness raisers of our hidden disorder currently mostly known as TMAU.
Recently he was interviewed for an ANOSMIA PODCAST CHANNEL.
Daniel tells his TMAU story in-depth.

Daniel has a youtube channel raising awareness of TMAU

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A EURORDIS and NORD Member Organization