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MEBO TMAU urine test

MEBO Research
TMAU Urine Test
United States only
PROGRAM IS TEMPORARILY SUSPENDED AS OF 2 MAY 2017

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Test analysis performed in batches of 20 or more

DATE: 2 MAY 2017
Currently on : PROGRAM IS TEMPORARILY SUSPENDED

Samples analyzed since June 2012 :
352
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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Blog Archive

Thursday, August 3, 2017

Systemic Body Odor sufferers needed for pilot study

Click on icon
for Pilot Study information


Fecal Body Odor, TMAU, Bromhidrosis sufferers
Candida odor, and other Systemic odor condition sufferers
are needed for pilot study doing DNA sequencing.

Is any sufferer interested in participating in a pilot study that involved DNA sequencing?

For more details about this pilot study, please see the PowerPoint Presentation above that Danny has done for us explaining the program. If you have any questions or wish to participate in this pilot study, please direct your questions to Danny at,

The following is an invitation message from Danny Kunz, who did the PowerPoint Presentation,
"Metabolic Pathway Simulation: Apocrine Bromhidrosis compared to TMAU" for the MEBO 2017 Annual Meetup.

There are people needed to get their DNA sequenced for a pilot study? This is being done by the same person who's fecal body odor presentation you [MEBO] posted not too long ago. I've attached the info regarding that under the exome sequencing pdf. Also attached a food list for fecal body odor sufferers.

We calculated some general food lists, which spans the fecal body odor patients and Bromhidrosis patients.


Levels:HIGH of Tryptophan, Tyrosine, Phenylalanine, Histidine, Alcohol, Acetic acid and sugar levels

Levels:LOW of Tryptophan, Tyrosine, Phenylalanine, Histidine, Alcohol, Acetic acid and sugar levels

Levels:VERY_HIGH of Tryptophan, Tyrosine, Phenylalanine, Histidine, Alcohol, Acetic acid and sugar levels

Levels:VERY_LOW of Tryptophan, Tyrosine, Phenylalanine, Histidine, Alcohol, Acetic acid and sugar levels


It's really great that Danny has thought of and reached out to our community for this pilot study. On behalf of our international community, we thank you very much, Danny.

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
www.mebo.com.br/
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)



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Food Lists for Fecal Body Odor Sufferers


We are very grateful to Danny Kunz for these 4 Food Lists to help fecal body odor sufferers better understand what proteins, organic compounds and sugars are in certain foods. To better understand what these compounds are, you can do a simple Wikipedia search on Tryptophan, Tyrosine, Phenylalanine, Histidine, Alcohol, Acetic acid, and sugar. See notes below the quoted text for additional information and references about these compounds.

By Danny and his team researching our community of systemic body odor sufferers, they help us better understand what role these compounds have, if any, in contributing to fecal body odor, including bromhidrosis, based on our genetic composition and/or metabolism. Some of these organic compounds are recommended and others are non-essentials. If any sufferer has done any tests in which these compounds are measured and compared to normal levels, and if any of them are elevated, perhaps it might be best to consider modifying the diet to bring them into their normal levels taking into account the information in the 4 food lists provided by Danny.

Danny and his team are currently carrying out a pilot study involving testing DNA sequencing of Systemic Body Odor Diseases. In addition, Danny Kunz did the PowerPoint Presentation,
"Metabolic Pathway Simulation: Apocrine Bromhidrosis compared to TMAU" for the MEBO 2017 Annual Meetup.

Danny tells us,

...I've attached a food list for fecal body odor sufferers.

We calculated some general food lists, which spans the fecal body odor patients and Bromhidrosis patients.


Levels:HIGH of Tryptophan, Tyrosine, Phenylalanine, Histidine, Alcohol, Acetic acid and sugar levels

Levels:LOW of Tryptophan, Tyrosine, Phenylalanine, Histidine, Alcohol, Acetic acid and sugar levels

Levels:VERY_HIGH of Tryptophan, Tyrosine, Phenylalanine, Histidine, Alcohol, Acetic acid and sugar levels

Levels:VERY_LOW of Tryptophan, Tyrosine, Phenylalanine, Histidine, Alcohol, Acetic acid and sugar levels



Tryptophan "is an α-amino acid that is used in the biosynthesis of proteins. It contains an α-amino group, an α-carboxylic acid group, and a side chain indole, classifying it as a non-polar, aromatic amino acid. It is essential in humans, meaning the body cannot synthesize it and thus it must be obtained from the diet. Tryptophan is also a precursor to the neurotransmitter serotonin and the hormone melatonin...For many organisms (including humans), tryptophan is needed to prevent illness or death, but cannot be synthesized by the organism and must be ingested; in short, it is an essential amino acid (Wikipedia)."

Tyrosine is one of the 20 standard amino acids that are used by cells to synthesize proteins...and a non-essential amino acid...(see Functions and dietary requirements in Wikipedia)

Phenylalanine is a precursor of Tyrosine...is an α-amino acid. Phenylalanine is found naturally in the breast milk of mammals. It is used in the manufacture of food and drink products and sold as a nutritional supplement for its reputed analgesic and antidepressant effects. (see dietary sources in Wikipedia)

Histidine is an α-amino acid that is used in the biosynthesis of proteins...The histidine amino acid is a precursor for histamine, an amine produced in the body necessary for inflammation...The Food and Nutrition Board (FNB) of the U.S. Institute of Medicine set Recommended Dietary Allowances (RDAs) for essential amino acids in 2002. For histadine, for adults 19 years and older, 14 mg/kg body weight/day. (See Requirements references in Wikipedia)

Alcohol : Ethanol occurs naturally as a byproduct of the metabolic process of yeast. As such, ethanol will be present in any yeast habitat. Ethanol can commonly be found in overripe fruit. Methanol is produced naturally in the anaerobic metabolism of many varieties of bacteria, and is commonly present in small amounts in the environment.

In chemistry, an alcohol is any organic compound in which the hydroxyl functional group (–OH) is bound to a saturated carbon atom... an alcohol is often called with the name of the corresponding alkyl group followed by the word "alcohol", e.g., methyl alcohol, ethyl alcohol. Propyl alcohol...Alcohols are then classified into primary, secondary (sec-, s-), and tertiary (tert-, t-), based upon the number of carbon atoms connected to the carbon atom that bears the hydroxyl functional group... (Wikipedia)

Sugar is the generic name for sweet, soluble carbohydrates, many of which are used in food...


María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
www.mebo.com.br/
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)



SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays
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MEBO gets small commission from Amazon.


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Senate Passes FDA Reauthorization Act of 2017

MEBO Research was an active organization supporting the passage of the FDA Reauthorization Act of 2017.  We are most pleased to have had the opportunity of joining the other rare diseases organization members of NORD in encouraging our legislators to pass this great bill.  It may very well work towards getting a therapeutic treatment for TMAU  become more readily available to our community than it would have before this bill was passed.  We thank everyone at NORD who organized this effort for making this come to fruition.

María

NORD Issues Statement on the Senate passage of the Food and Drug Administration Reauthorization Act of 2017
Washington, D.C., August 3, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to the Senate passage of the Food and Drug Administration Reauthorization Act of 2017:

“Today the Senate joined the House in overwhelmingly passing the Food and Drug Administration Reauthorization Act (FDARA). NORD applauds the Senate’s bipartisan commitment to the individuals with rare diseases who rely on the Food and Drug Administration (FDA) to ensure the delivery of safe, innovative, and effective treatments.

The FDA user fee agreements passed today as part of FDARA are the result of months of negotiation between FDA and the medical product industry, with significant input from the patient advocacy community. Among other provisions, these agreements include the expansion of the FDA Rare Diseases Program; strengthening of the expedited review pathway for breakthrough therapies; development of a process through which real-world evidence can be utilized; continuation of the Patient-Focused Drug Development program; and the creation of the National Evaluation System for health Technology (NEST).

We actively support FDARA and the benefits it will bring to the rare disease community. By reauthorizing the user fee agreements, the Senate has acted to protect rare disease patients and prevent the forestalling of advancement at FDA. We thank the Senate for taking this important step, and we ask that President Trump sign FDARA into law as expeditiously as possible.” 
View all of NORD's recent policy statements by clicking here.
Sign up to receive policy alerts from NORD here.
NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.  NORD, along with its more than 260 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services. www.rarediseases.org.


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