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Blog Archive

Saturday, April 14, 2018

Causes of Body Odor PowerPoint Presentation Danny Kunz

As usual, Danny Kunz most graciously provided the MEBO community with a very informative PowerPoint presentation on the Causes of Body Odor. This PowerPoint is to be presented and discussed at length at the MEBO Annual Conference to be held on Saturday, April 14, 2018 from 12:00 noon thru 5:00pm at the following location:

CONFERENCE LOCATION April 14, 2018, 12:00 noon thru 5:00pm. Appetizers will be served. You can also bring your own food and/or drinks, if you like.


Courtyard Savannah Midtown
By Marriott
6703 Abercorn Street
Savannah, Ga 31405
912 354 7878

In addition, much discussion will take place at this conference on his Citizen Research Group's website, "Body Odor Research Blog".

We are most grateful to Danny for his ongoing contributions and guidance to our international community.


María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
www.mebo.com.br/
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)



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Mental Health Director's Topics: Crisis Prevention, Work & TMAU


The following are papers the new MEBO Mental Health Director has written for our community:

CRISIS PREVENTION PLAN

We all have been there, some of us admit it and some of us are ashamed to admit it. Fact is that a lot of us have experienced thoughts about suicide. Feelings and thoughts of suicides can occur when you feel hopeless, helpless and feel that there is not solution for your problems. The anguish, distress and pain is becoming bigger than your ability to cope with the situation. The only way out might seem like committing suicide... (Click on icon to see paper)


Work and Trimethylaminuria

Valuable tips for finding and keeping a job with Trimethylaminuria
Author: Crissan Rosalia
Mental Health Director, MSc. Health Psychology

Having a job when you have a malodor condition like Trimethylaminuria (TMAU), is not always easy. For people with TMAU, working can be very stressful. This is because sufferers are worried about offending their coworkers, they also worry constantly about getting fired due to their symptoms. Sometimes sufferers are bullied and harassed, which can create a tense work environment in which they feel powerless, depressed and anxious. Despite all of these factors, having a job can be very beneficial. These benefits can actually be regarded as protective factors which can increase the health and wellbeing, even of patients with malodor conditions...(Click on icon to see paper)


Worksheet 1.1 Working conditions

This chart is an overview of several possible work conditions you might consider when applying for  job or when you already have a job and want to evaluate or negotiate with your supervisor. Each column has a color, Green= YES, ideal job condition, Yellow= Maybe or negotiable, these are conditions you might consider or are optional, Red= NO or deal breaker, these are conditions that are not favorable. You can add your own conditions as well!

What type of work would you like to do?
Do you have the necessary qualifications (diploma’s, certificates and work experience) to apply for this job? If you don’t, what steps can you take to become eligible for the job you want to apply for?
On a scale of one to ten how motivated are you to keep working or start with a new job?
Are you willing to talk about your health condition at work ?

Crissan

Crissan Rosalia
Mental Health Director

A Public Charity
c.rosalia@meboresearch.org
www.meboresearch.org
MEBO's Blog (English)



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A EURORDIS and NORD Member Organization

Announcement: MEBO Mental Health Director

As part of the 2018 Annual MEBO Conference and Meetup currently being held at Savannah, Ga , it is my pleasure to introduce to our community the new MEBO Mental Health Director, Crissan Rosalia, Health Psychologist, Msc., coach and counsellor. Crissan has approached me numerous times asking for opportunities for her to reach out to our community, whom she would love to uplift and guide them towards helping them become more empowered and stronger emotionally and mentally to face the trials that result from living with an odor condition and/or PATM.

Crissan is a TMAU1 sufferer and member of the online MEBO Support Group, PATM Group, and RareConnect. She has opened many avenues for sufferers to get in touch with her, so feel free to do so. She’s truly a lovely person. Below is a list of topics she would like to write articles and do audio podcasts about for our community:

Crissan Rosalia's Bio
I was thinking about doing monthly topics. So every month we could pick a topic and I can post articles and audio (podcast) about the topic of the month, e.g. how to cope with bullying and harassment. I could also provide other relevant information, such as articles, video material, and worksheets with mention of the sources of course.

List of possible topics

Work

- Work and Tmau (several subcategories: finding a suitable job, keeping a job, dealing with conflicts at work)

School, college and Uni

- Going to school with TMAU

Bullying and harassment
- Coping with bullying, harassment, comments and gossip

Talking about TMAU
- Breaking the silence: How to talk about TMAU
- Talking to family and friends
- Talking to your doctor
- Talking to strangers

Emotional and mental health
- How to cope with anxiety
- How to cope with feelings of depression
- How to build resilience
- Self-esteem
- Coping with Shame
- Trauma
- Emotion regulation
- Stress management
- How to stay healthy
- Coping with suicidal thoughts and feelings

Diagnosis
- How do I know what I have, do I have TMAU, PATM or Olfactory reference syndrome?
- Getting a diagnosis (before, during the process, after)
- Negative TMAU diagnosis, but I still have symptoms. How do I proceed?

Relationships
- Having and maintaining meaningful relationships
- Dating with TMAU
- Raising children

Thank you, Crissan for being the kind-hearted, compassionate and intelligent person that you are, and for being so willing to put your skills to uplift our community. I'm looking forward to reading all the information you plan to share with us.

email Crissan : takecharge@re-charge.org


María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
www.mebo.com.br/
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)



SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays
at no extra cost to you.
MEBO gets small commission from Amazon.


get New Posts by EMAIL : Enter your email address :



A EURORDIS and NORD Member Organization