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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org

MEBO Private Facebook Group
to join : go to
or contact
Ubiome Gut EXPLORER
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Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

Monday, July 22, 2019

MEBO-Ubiome study : quick look at diet survey

Update on MEBO - Ubiome study : NCT03582826

Longtime MEBO helper, Prof Irene Gabashvili, has been overseeing the MEBO-Ubiome study NCT03582826.
Recently she was given much of the data.
Irene has been looking at the Ubiome data along with the survey answers of the participants.

Here Irene takes a look at the DIET SURVEY data.

The full post can be seen on Irene's AURAMETRIX Blog Post
Update on Clinical trial NCT03582826:  Microbial Basis of Systemic Malodor and PATM Conditions

Recruited: 110 participants, Distributed 330 kits, Received IDs for 141 kits
Completed study: 40 participants
Submitted 2 samples: 6
Submitted 1 sample: 9
Answered questionnaire, received kits, but did not submit/share kit numbers: 7
Did not return samples nor answered QoL questionnaire: 48 participants

Status of data analysis: received 145 datasets from uBiome.


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Wednesday, July 10, 2019

Crissan's Mental Health Column: Breaking the patterns of shame


Click to see article


JULY 2019
MEBO Mental Health Column
MEBO Mental Health Director

Breaking the patterns of shame

In her April Mental Health Column post, Moving from Denial, Anger and Depression to acceptance and self-acceptance, Crissan describes very real experiences sufferers go through and the impact it has on mental health. She then provides a very helpful explanation of how a sufferer can accomplish this process of healing.

In this, her July article, Breaking the patterns of shame, Crissan expounds in a very clear and easy to follow manner how shame and guilt can shape our lives in such an adverse manner,


Shame is an emotion that can become very heavy. People who feel ashamed might feel like they have broken moral and social laws, and like they have disappointed themselves and others. As a result, they create a negative self-image, they feel powerless, worthless and isolated. Even though shame can have a positive function in society, for sufferers of a malodor condition the continuous experience of shame can be very harmful. It becomes toxic and they may develop a shame-based identity. (Bradshaw, 2006).

Crissan explains just how deeply shame affects us,


Shame and guilt are often mixed and misunderstood. The simplest way to explain the difference is Shame- “I’m wrong, unworthy” and Guilt- “I did something wrong”. So the difference is in “being” and “doing”.

We are most grateful to Crissan for providing us with an action plan that is aimed at helping us grab a hold of this driving force and conquer it. In the process, we become more empowered in our lives as we move forward toward pursuing proper treatment for the odor/PATM condition.

As a community which is very heavily laden with so much shame, we owe so much to Crissan for having taken a significant amount of her time to prepare this paper for us. Her genuine concern for the well-being of each member of our community is so present in everything she steadfastly does for us. As a fellow TMAU sufferer, Crissan understands the depth of injury these conditions cause, and she has dedicated herself to help sufferers regain control of the mental health and their lives. For this, we thank you, Crissan from the bottom of our hearts.



María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
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Testimonial: Case of dental decay below amalgam


This post is made at the request of a sufferer with uncontrollable halitosis for 40 years. He would like to share this with the whole MEBO international community.

A long-time member of our community has been struggling for 40 years with uncontrollable halitosis. Even though he was able to reduce his odor symptoms with healthy eating, avoiding junk food and processed foods, foods with added hormones and antibiotics, reduced red meat, etc., he found that his halitosis was persistent. There was nothing he could do to completely eliminate it. His frequent visits a year to his dentist for cleanings still didn't resolve the problem.

Out of sheer desperation, he asked his dentist to please remove the amalgam in his teeth, one at a time. After much discussion, his dentist consented. After removing the first one, she found that he had dental decay below the amalgam. It was very odorous. She cleaned it and treated it with antibiotics. Afterwards, she replaced the metal filling with non-amalgam filling. His halitosis immediately went away, after 40 years, and has never returned. The only positive about his 40 years experience is that he has learned to eat healthy and he enjoys his diet and health.

According to the American Dental Association article, "When a filling needs to be replaced"


[an old filling]...is intended to replace tooth structure lost to decay. Dental fillings may last many years; however, eventually all fillings need to be replaced. Constant assault from eating and drinking, or stress from clenching or grinding, eventually may cause a dental filling to fail. Bacteria cause tooth decay.

Perhaps haltosis sufferers should consult with their dentist the pros and cons of filling replacements, even when the tooth and gums appear to be healthy. This was the case of the sufferer who is sharing his story with us, and there was decay under his amalgam.


María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)



SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays
at no extra cost to you.
MEBO gets small commission from Amazon.


get New Posts by EMAIL : Enter your email address :






A EURORDIS and NORD Member Organization