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MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org

MEBO Private Facebook Group
to join : go to
or contact
Ubiome Gut EXPLORER : 10% OFF
Join/Watch the weekly
TMAU UP Podcasts

Videos : TMAU stories

Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 31-NOV-2016:
£ 943.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.80/GBP = $1.00/USD

£1,398.07 = $1,745.14

MEBO UK PAYPAL FOR TRINZYME

********
MEBO US PAYPAL FOR TRINZYME

Your currency will be automatically converted to USD or GBP by PayPal.

Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

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Blog Archive

Sunday, January 6, 2019

$818 million deal new path for CRISPR therapies

Click on item to see article
For years sufferers of uncontrollable odor conditions including, but not limited to TMAU, and those who suffer from those around them developing allergic reactions to elevated compounds emitted from their bodies (PATM), have hoped to someday have access to gene therapies and alternative therapies other than antibiotics to get to the root of the problem. The up to $818 million deal between Locus Biosciences and Janssen Pharmaceuticals (a division of Johnson & Johnson) addresses the possibility of materializing this dream.

In addition to developing effective genetic therapies for various diseases, the union of these two companies will also continue with research and develop the use of bacteriophages designed to target bacterial infection. This is just the beginning and still in the clinical trial phases, but at least it is well funded and the goal of these companies is to ultimately "manufacture and commercialize CRISPR-Cas3-enhanced products targeting bacterial pathogens for the potential treatment..."


The up to $818 million deal between Locus Biosciences and Janssen Pharmaceuticals (a division of Johnson & Johnson) that was announced yesterday points toward a new path for CRISPR gene editing technologies and (potentially) the whole field of microbiome-targeted therapies...

While the Cas9 CRISPR technologies can edit targeted DNA — either deleting specific genetic material or replacing it with different genetic code — Cas3 simply removes DNA strains. “Its purpose is the destruction of invading DNA,” says Locus chief executive, Paul Garofolo...

Locus is already commercializing a version of its technology with bacteriophages designed to target e coli bacteria to treat urinary tract infections. The company is on target to begin its first clinical trials in the third quarter of the year...

The focus on bacterial infection and removing harmful bacteria while ensuring that the rest of a patient’s microbiome is intact is a huge step forward for treating diseases that scientists believe could be linked to bacterial health in a body, according to Garofolo.
techcrunch.com

María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)


SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays
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A EURORDIS and NORD Member Organization

Tuesday, January 1, 2019

Petition for TMAU research funding

Click on icon to go to Petition
As a 501(c)3 Public Charity, we at MEBO Research, Inc., ask:
  1. Donald Trump, President of the US,
  2. Theresa May MP, Prime Minister of the UK, 
  3. Jeremy Corbyn, MP Leader of Labour Party, 
  4. BioMarin Pharmaceutical, 
  5. CVS Pharmacy, and 
  6. Proctor & Gamble 
to promote employment opportunities for TMAU sufferers by funding research into the rare disorder, Trimethylaminuria (TMAU). MEBO is also a registered organization member of the National Organization of Rare Disorders (NORD).

Please support this by signing this petition. Click on icon above to get to the petition. Many thanks to Tom Borman for initiating this effort. Thank you!

María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)


SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays
at no extra cost to you.
MEBO gets small commission from Amazon.

get New Posts by EMAIL : Enter your email address :



A EURORDIS and NORD Member Organization

Wednesday, December 19, 2018

Crissan's Mental Health Column: Five effective Stress Management exercises


Click to read article




DECEMBER 2018

MEBO Mental Health Monthly Column
MEBO Mental Health Director


COPING WITH THE HOLIDAYS
Action plan

In her November Mental Health Column post, Crissan focused on stress management, the effects it has on the body and mind, and techniques for stress management. Now in her December Mental Health Column post, she addresses the challenging yearly issues sufferers of chronic odor/PATM experience during the Holiday season, including being socially active with family and friends, usually sharing a meal, or staying home alone, etc.

The Holidays can also cause the rise of alot of emotions. This period of time can cause feelings of anxiety and depression to arise. Some might also feel lonely due to lack of contact with families and friends. It can be a sentimental time for many people. Especially if you are spending the Holidays alone, you have lost a relative or have cut-off all contact with family and friends...

Action plan
What are you going to do? How do you want to spend your Holidays this year?
Planning ahead and thinking of an action plan can lessen the stress and help you prepare.
– Take some time to decide how you want to spend the Holidays.
– Decide if you're going to spend the Holidays with family or if you'd rather take some time to yourself if possible. Also decide if you're going to follow the protocol. Do you want to stick to your diet or are going to indulge in Holiday foods?


It is wonderful to see the love and care with which Crissan takes her time to write these articles for us, with such careful thought and generous delivery of valuable tools we can use to improve our outlook and our lives. She gives her heart and soul to lift up our community so that each has the wherewithal to find happiness and peace in life. Thank you, Crissan!




María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)


SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays
at no extra cost to you.
MEBO gets small commission from Amazon.

get New Posts by EMAIL : Enter your email address :



A EURORDIS and NORD Member Organization