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MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

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Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org

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or contact
Ubiome Gut EXPLORER : 10% OFF
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Videos : TMAU stories

Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
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RESEARCH DETAILS

DONATIONS THRU 31-NOV-2016:
£ 943.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.80/GBP = $1.00/USD

£1,398.07 = $1,745.14

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Blog Archive

Thursday, November 29, 2018

Publication uBiome Grant Awarded to MEBO

uBiome Awards Grant to MEBO Research, a Public Charity, to Study the Dynamic of Gut Microbiota in Idiopathic Malodor Production

Click on icon to see article

A press release was published today about the nearly $500,000 worth of microbiome research grant awarded to MEBO by uBiome for the "Microbial Basis of Systemic Malodor and PATM Conditions (PATM)", ClinicalTrials.gov Identifier: NCT03582826.

The aim of this study is to support the gathering of comprehensive data to assess the correlation of gut microbiome to physical and psycho-social health conditions.

“This study is exciting because it advances our understanding of metabolic dysfunction and its correlation to rare disease,” said Jessica Richman, PhD, co-founder and CEO of uBiome. “We are honored to partner with MEBO Research to support this novel study on this understudied patient population.”

Dr. Irene Gabashvili, PhD, is Scientific Director of MEBO Research and Principal Investigator. A Stanford Medicine and HP Labs alumna, Dr. Gabashvili has authored numerous publications and has led several diverse biomedical and software development projects. In addition, as founder of Aurametrix, Inc., she developed a health-management platform to alleviate metabolic disorders and maximize health and wellbeing.
"We are very excited to partner with uBiome for this joint project. Part of MEBO’s mission as a charity is to pursue studies on gut microbiota to understand gut health and the microbial communities that produce malodor symptoms. uBiome is an innovator in microbiome analysis.” - Maria de la Torre"

This very generous grant allows for MEBO to include participants, who experience similar physical symptoms with psycho-social health conditions, from 6 continents of the world, including Africa, Europe, Asia, North America, South America, and Australia. Our profound gratitude goes out to the uBiome team for their very kind and professional support throughout this process.

Latest posts about the study :
Link
(Scroll down to see all posts)


María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)



SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays
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A EURORDIS and NORD Member Organization

Monday, November 19, 2018

Orphan Drug Act Resolution Introduced in Congress


As a Member Organization of the National Organization for Rare Disorders (NORD), MEBO is in a position to unite with attorneys and legislators to support the passing of resolutions, such as the Orphan Drug Act Resolution mentioned in the NORD policy alert below.

H.Res.1154 was introduced in Congress by Senator Hatch and Representatives Lance and Butterfield, affirming the importance of the Orphan Drug Act, applauding its lifesaving contributions over its 35-year history, and recognizing the need to continue supporting research and development for rare diseases. For more information on the Resolution, here. Additionally, for more general information on the ODA, check out NORD's new one-pager here

The Orphan Drug Act has the potential of increasing the possibility of researchers for our community to obtain research grants to develop or designate existing therapeutics for conditions suffered by members of the MEBO Community around the world. Therefore, all sufferers in the United States are asked to write to their Senators and Representatives asking them to "demonstrate your support for the ODA by cosponsoring H.Res 1154 and S.Res 690" which,

(1) applauds the tremendous growth in research and development into new therapies for rare diseases and the resulting number of FDA-approved therapies for people living with rare diseases;
(2) recognizes that significant research and development efforts and related investments are needed to develop therapies to treat and cure the thousands of rare diseases for which no treatment options are currently available; and
(3) affirms the need to continue supporting public and encouraging private investment in research and development of new treatments for rare diseases.



María
María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)




SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays
at no extra cost to you.
MEBO gets small commission from Amazon.


get New Posts by EMAIL : Enter your email address :






A EURORDIS and NORD Member Organization

Monday, November 12, 2018

Crissan's Mental Health Column: Five effective Stress Management exercises

Five effective Stress Management exercises




NOVEMBER 2018

MEBO Mental Health Monthly Column
MEBO Mental Health Director


STRESS MANAGEMENT
Five effective
Stress Management Exercises

In her October Mental Health Column post, Crissan shares her insightful perspective and professional views on how sufferers can enrich their lives with meaningful relationships. She points out that there are many potential sources of fulfilling relationships that we can tap into. Now in her November Mental Health Column post, she focuses on stress management, the effects it has on the body and mind, and techniques for stress management.


In earlier articles we discussed the effects that stress can have on the body and mind. Stress is a big issue for most malodor and PATM sufferers. The fight-or-flight response can trigger a lot of physical symptoms, it increases tension in the body and stress hormones to soar. When this inborn system is turned on continuously, it can be very damaging and can even cause malodor or PATM symptoms to increase. Relaxation and stress management are thus very important for malodor and PATM sufferers. This is easier said than done of course.

Crissan's indepth article covers the following topics from the perspective of a sufferer and Mental Health Professional:


  • By increasing your awareness of your breathing patterns and shifting to more abdominal breathing, you can balance the oxygen and carbon dioxide blood levels in your body, normalize your heart rate, and reduce the muscle tension and anxiety present with stress-related symptoms or thoughts...
  • Progressive muscle relaxation is an exercise that reduces stress and anxiety in your body by having you slowly tense and then relax each muscle...
  • Mindful- Self-compassion exercise...
  • Autogenic training (AT) has been found to be effective in the treatment of muscle tension and various disorders of the respiratory tract (hyperventilation and bronchial asthma), the gastrointestinal tract (constipation, diarrhea, gastritis, ulcers, and spasms), the circulatory system (racing heart, irregular heartbeat, high blood pressure, cold extremities, and headaches), and the endocrine system (thyroid problems)...
  • Autogenic Formulas for Calming the Mind.


Crissan also recommends a workbook that depicts many more relaxation and stress management techniques. Click on icon to get information on this workbook. Shop around for lowest price.

Our MEBO Mental Health Director, is already planning her December column paper! She gives her heart and soul to lift up our community so that each has the wherewithal to find happiness and peace in life. Thank you, Crissan!


María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)


SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays
at no extra cost to you.
MEBO gets small commission from Amazon.

get New Posts by EMAIL : Enter your email address :



A EURORDIS and NORD Member Organization