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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Wednesday, February 17, 2010

'Microbes and Us' Slide presentation by Dr. Irene Gabashvili for MEBO Nashville Conference 2010



View more presentations from Aurametrix.
IN addition to having a good time doing our trial run of Dr. Irene Gabashvili’s presentation, ‘Microbes and Us’, in Vokle live, chat, real-time e-mail, she has now posted for everyone to see these slides and Q&A transcript of the Live Online Webinar, which took place on February 12, 2010. This transcript is very informative and particularly interesting as it identifies the normal bacterial flora of humans and where bacteria lives in our bodies, explains the types of microbes including intestinal microbiota responsible for IBS-C, IBS-D, IBD, Crohn’s disease, as well conditions that may be linked to microbiota, such as halitosis, hyperhidrosis, multiple chemical sensitivities, food intolerances (IBS, Celiac, TMAU, CFS), and more. Dr. Irene Gabashvili, Founder of Aurametrix, Personal Health Management Systems, presents an in-depth discussion of microbes including Pathogenic Bacteria DatabaseAlphabetical List of Pathogenic Bacteria’, which has one of the most complete database of the species. In this slideshow presentation, there is a section entitled ‘Diet Tidbits’ which addresses the most widely promoted prebiotics that have been suggested to increase the number of bifidobacteria and discusses the benefits of probiotics. This section also touches upon a very restrictive diet promoted as a way of reducing IBS symptoms, Crohn’s disease, Ulcerative Colitis and autism.
The final section includes the answers to the following webinar audience’s questions:

  • Why do people have Bacterial Overgrowth?
  • Do bacterial populations in human body depend on genetics, environment?
  • What kind of bacteria are TMA-producing?
  • I heard that Solobacteria causes halitosis. Is it really so? (includes a list of ‘Halitosis-related bacteria’)
  • What bacteria smell?
  • Is heterogeneity of metabolic body odor sufferers hindering research?
  • The collection of microbes for study must be a problem. Cross-contamination, etc.
  • How do you get them?
  • What is the most effective treatment to eliminate the desired bacteria: food or antibiotics?
  • How often can we take antibiotics without causing harm?
  • How does stress affect bacteria and enzyme deficiencies / pathways?
  • How does stress affect intestinal permeability?
  • Could a probiotic cleanse (sold on the market) help to flush us help to populate good bacteria?
  • For many of us the diet is confusing would it be difficult to customize a diet for us?
  • How long will it take to see diet results?
  • What would be the ideal diet..Are proteins beneficial?
  • Why some IBS patients have no odor while others do?
  • Can FMO3 be genetically engineered into a probiotic?
We would like to thank all the participants who asked these questions and to our Pharmaceutical Scientist and owner of body odor support.com, Arun Nagrath, for participating in our live discussion session. In spite of our technical ‘growing pains’ as we attempted to create this piece, all in all, we have acquired very valuable information from Dr. Gabashvili, to whom we are deeply appreciative for having helped us initiate this test webinar for the MEBO TMAU, Body Odor and Halitosis Webinar Series. We hope to hear much more from her as she has also so graciously volunteered to be the Overseer of MEBO Research’s exploratory study. On behalf of the body odor/TMAU and halitosis community, we thank you, Irene. http://aurametrix.com http://www.linkedin.com/in/igabashvili http://sites.google.com/site/irenegabashvili/ http://www.biology.sjsu.edu/facultystaff/gabashvili.aspx

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