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MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org

MEBO Private Facebook Group
to join : go to
or contact
Ubiome Gut EXPLORER : 10% OFF
Join/Watch the weekly
TMAU UP Podcasts

Videos : TMAU stories

Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 31-NOV-2016:
£ 943.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.80/GBP = $1.00/USD

£1,398.07 = $1,745.14

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Sunday, January 14, 2018

Lawsuit stems from worker's 'chronic body odor'

Chronic body odor is the focus of a lawsuit filed against the city of Indianapolis.

Author: Fatima Hussein, IndyStar
Published: 8:11 AM EST January 2, 2018
IndyStar, Part of USA Today Network

In response to a complaint by a chronic body odor sufferer to HR, the 6-year employment of a lead staff of the U.S. Distric Court for the Southern District of Indiana was terminated because she installed air freshners throughout the work area to "improve the overall quality of air in the office."


The U.S. Equal Employment Opportunity Commission in some cases considers body odor a protected disability...The EEOC's website states the law exists in order to protect individuals from actions based on unfounded assumptions that their relationship to a person with a disability would affect their job performance.

She had an "exemplary and unblemished employment record," according to the complaint.

The ADA prohibits discrimination based on relationship or association with a disabled person...If body odor results from a disability, employers should consider whether reasonable accommodation is appropriate, according to the Job Accommodation Network, a service of the U.S. Labor Department. Accommodations could include allowing flexible restroom breaks, providing a private office with an air-purification system or reassigning the person to a position that does not involve direct contact with the public...

Due to the hard work of the MEBO Directors and volunteers, and by MEBO being an organization member of NORD and EURORDIS, we have elevated consciousness to some extent, to the point of an odor condition to be protected by the U.S. Equal Opportunity Commission and by the American with Disabilities Act. This is a major advancement for sufferers in our community!

By educating ourselves about what has already been accomplished in terms of raising awareness in the U.S. as we have in the U.K., we can see the fruits of our labor come to fruition. We have been recognized by serious, well respected medical institutions, such as those listed below. This in turn, provides ammunition to include body odor sufferers under the protection of the American with Disabilities Act, and possibly other laws in other countries. Our goal is to qualify for on the job accommodations whenever possible in order to preserve and protect the dignity of sufferers.

We will follow this case very closely, because the whole legal system in the US is based on precedence - Judgments arrived at in previous litigation. This is definitely a milestone for our community!

It is always a very good idea for sufferers to keep a list of national organizations that validate odor conditions that can protect sufferers under the Americans with Disability Act, or similar programs in other countries.

Some of the best organizations that have represented us well in our efforts to elevate not only TMAU, but other yet to be defined body odor and systemic breath odor conditions, are the following:

The National Organization of Rare Disorders U.S.(NORD)


  • of which MEBO is an organization member.


  • EURORDIS


  • See the links posted in Eurordis about TMAU and MEBO. MEBO has two representatives who are moderators in RareConnect, malory and barnowl. RareConnect offers sufferers a voice in many languages from around the world. MEBO is also listed as an organizations members of RareConnect.


  • Orphanet


  • Severe primary trimethylaminuria


  • Orphanet also mentions the UK part of MEBO, as well as other representatives around Europe. A total of 37 organizations! Very interesting!


  • Orphanet first 2 pages pages of links to TMAU, FMO3, and .


  • U.S. National Library of Medicine (NIH), Genetic Home Reference


  • Disease Information Organization: MEBO Research
  • Has links to Trimethylaminuria

  • they list the following:
    ...FMO5 gene: subpopulation with reduced TMA N-oxidation capacity resulting in TMAU
    ...FMO3 gene: More than 25 mutations in the FMO3 gene have been identified in people with TMAU


  • MedlinePlus

  • talks about Metabolic Disorders


  • National Human Genome Research Institute

  • Learning About Trimethylaminuria


  • Genetic and Rare Diseases Information Center (GARD)

  • Is part of NIH National Center for Advancing Translational Sciences
    ...GARD lists MEBO as the organization for Systemic Body Odor and Halitosis

    http://www.newser.com/story/253595/woman-who-tried-to-combat-co-workers-odor-gets-fired.html 


  • María

    María de la Torre
    Founder and Executive Director

    A Public Charity
    maria.delatorre@meboresearch.com
    www.meboresearch.org
    www.mebo.com.br/
    MEBO's Blog (English)
    El Blog de MEBO (español)
    MEBO Brasil - Blog (Portuguese)



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    A EURORDIS and NORD Member Organization

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