Government sponsored organization: on TMAU & MEBO Research

Some of the best organizations that have represented us well in our efforts to elevate not only TMAU, but other yet to be defined body odor and systemic breath odor conditions, are the following:

The National Organization of Rare Disorders U.S.(NORD)

of which MEBO is an organization member.

EURORDIS

See the links posted in Eurordis about TMAU and MEBO. MEBO has two representatives who are moderators in RareConnect, malory and barnowl. RareConnect offers sufferers a voice in many languages from around the world. MEBO is also listed as an organizations members of RareConnect.

Orphanet

Severe primary trimethylaminuria

Orphanet also mentions the UK part of MEBO, as well as other representatives around Europe. A total of 37 organizations! Very interesting!

Orphanet first 2 pages pages of links to TMAU, FMO3, and .

U.S. National Library of Medicine (NIH), Genetic Home Reference

Disease Information Organization: MEBO Research

Has links to Trimethylaminuria

they list the following:
...FMO5 gene: subpopulation with reduced TMA N-oxidation capacity resulting in TMAU
...FMO3 gene: More than 25 mutations in the FMO3 gene have been identified in people with TMAU

MedlinePlus

talks about Metabolic Disorders

National Human Genome Research Institute

Learning About Trimethylaminuria

Genetic and Rare Diseases Information Center (GARD)

Is part of NIH National Center for Advancing Translational Sciences
...GARD lists MEBO as the organization for Systemic Body Odor and Halitosis

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María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
www.mebo.com.br/
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)

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A EURORDIS and NORD Member Organization