
Some of the best organizations that have represented us well in our efforts to elevate not only TMAU, but other yet to be defined body odor and systemic breath odor conditions, are the following:
of which MEBO is an organization member.
See the links posted in Eurordis about TMAU and MEBO. MEBO has two representatives who are moderators in RareConnect, malory and barnowl. RareConnect offers sufferers a voice in many languages from around the world. MEBO is also listed as an organizations members of RareConnect.
Severe primary trimethylaminuria
Orphanet also mentions the UK part of MEBO, as well as other representatives around Europe. A total of 37 organizations! Very interesting!
Orphanet first 2 pages pages of links to TMAU, FMO3, and .
Disease Information Organization: MEBO Research
Has links to Trimethylaminuria
they list the following:
...FMO5 gene: subpopulation with reduced TMA N-oxidation capacity resulting in TMAU
...FMO3 gene: More than 25 mutations in the FMO3 gene have been identified in people with TMAU
talks about Metabolic Disorders
Learning About Trimethylaminuria
Is part of NIH National Center for Advancing Translational Sciences
...GARD lists MEBO as the organization for Systemic Body Odor and Halitosis
María
María de la Torre
Founder and Executive Director
A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
www.mebo.com.br/
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)
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