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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, June 4, 2008

Summer UK Meetup, Manchester, 14th June 2008 arranged by Arun

Message from Arun Nagrath of the 'MSN groups' Body Odor messageboard :

Hi guys,
It is that time of year again where the UK members emerge from the safety of their cocoon and discover that there is indeed an orangeball in the sky!

Yes, the gang are going to descend upon poor unsuspecting Manchester for the next UK breath/body odor bash! ...beware innocent civilians of Manchester! have been warned! :)

As usual, this will be an outdoor event, regardless of weather conditions! :))

I suspect the Londoners will get the Megabus up and make it a weekend affair although one or two members are planning to come up just for the day.

The Mancunian (people living in Manchester) members are having a think about the agenda but, as usual, it will be a fun event.

In previous meetups we have gone 10 pin bowling, go-kart racing, Adventure Park rides, Madam Tussauds, Riverboat rides on the Thames,
Thames Festival Carnival, dinner/cocktails on a boat/floating restaurant, roast turkey at my place, gas-testing on some of my basic equipment! etc.

In 95% of cases we are not able to detect each other's odour so I guess you guys can relax! If need be, I can put you guys at ease with my karaoke rendition of Berlin's 'Take my breath away'! (Top Gun)

I am always welcoming new members to these Meetups (whether from the UK or abroad!). Anyone coming long distance is welcome to stay at my place.

If you want to know more, please call me at home any evening after 7pm GMT. My land line number is +44 (0) 1375 484 269 or you can email me
on arunnagrath at hotmail dot com

Alternatively, dial in on our America-based phone conference on Sundays 2pm EST. (You have to prefix this with 001 as the
International code prefix if dialling from UK). Dial-in number is (712) 432 1620 then type the access phone on your phone keypad. It is 391629#

A fortnight back we had 71 callers on the line. You can chat with me on the conference, about the UK Meetup.

Please note that we will be holding another meetup in London later in the year (date to be arranged). Keep in touch with me by email if you want to attend that one too guys!

These events are for your pleasure so 'Be there or be square!'


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