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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, December 5, 2009

Woman awarded $3 million damages for unfair dismissal including a body odor problem

A lady in California was awarded $20 million from her former employer for a number of reasons, including having panic attacks which she said the medication for it caused her to have an "embarrassing body odor". The court of appeal reduced the amount to $3 million. The body odor was only 1 aspect of the 'evidence' against her employer and supervisor, who she said made disparaging remarks despite "knowing" it was a "result of the medication". It doesn't seem to say what the odor smelt of. Possibly this is a precedent that body odor as a medical condition could have some employment law rights.

Short article on the Charlene Roby body odor dismissal case

Roby versus McKesson body odor case : full legal paper in pdf

...The Court of Appeal suggested that supervisor Schoener‟s demeaning
comments about Roby‟s body odor were necessary personnel management actions,
not acts of harassment, because Schoener needed to take action in response to the
complaints of other employees. (See Hannoon v. Fawn Eng’g Corp. (8th Cir.
2003) 324 F.3d 1041, 1047 [Title VII case].) Here, however, the evidence
supports the jury‟s conclusion that Schoener handled the matter in a way that was
unnecessarily demeaning, including reprimanding Roby in front of coworkers and
telling Roby “to take more showers.” It was the demeaning manner in which
Schoener addressed this issue that constituted the harassment...


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