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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Friday, July 23, 2010

Lady with TMAU on UK morning TV programme

Claire appeared on the popular mid-morning UK TV lifestyle programme 'This Morning' on Tuesday 20th July, to talk about her trimethylaminuria. The subject was handled very sensitively and will lead to further awareness of TMAU. Claire made sure they understood that 'fish body odor' was not a correct description in her case, and used the terms 'pooey' and 'garbage' to describe her smells, which is a brave admission and one many of us can more relate to. Thank you to Claire for courageously appearing on TV. Amazingly, This is the 3rd person to talk about their TMAU on UK TV this year. We all benefit from their bravery and the taboo about the subject is becoming weaker, as well as hopefully raising awareness amongst the medical system. The influential effect of appearing in the media cannot be underestimated. Thanks to you all. The video is on the 'This Morning' website but not viewable to those outside the UK, so a copy has been put on youtube. Claire regularly posts on the forum, which again played a pivotal role in making an appearance possible. Our thanks again to the site owner, Big Vern, for all he is doing for the community.


Anonymous said...

Just saw this and impressed by the level of professionalism of everyone involved. Thank you Claire for your courage. You are a beautiful person.

Jan 10, 2014, 3:06:00 PM
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