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MEBO - UBIOME study 2018

NCT03582826
ClinicalTrials.gov
MEBO Gut Microbiome Study
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Ubiome Gut EXPLORER : 10% OFF
Join/Watch the weekly
TMAU UP Podcasts

Videos : TMAU stories

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 31-NOV-2016:
£ 943.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.80/GBP = $1.00/USD

£1,398.07 = $1,745.14

MEBO UK PAYPAL FOR TRINZYME

********
MEBO US PAYPAL FOR TRINZYME

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Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

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Blog Archive

Friday, July 23, 2010

Lady with TMAU on UK morning TV programme

Claire appeared on the popular mid-morning UK TV lifestyle programme 'This Morning' on Tuesday 20th July, to talk about her trimethylaminuria. The subject was handled very sensitively and will lead to further awareness of TMAU. Claire made sure they understood that 'fish body odor' was not a correct description in her case, and used the terms 'pooey' and 'garbage' to describe her smells, which is a brave admission and one many of us can more relate to. Thank you to Claire for courageously appearing on TV. Amazingly, This is the 3rd person to talk about their TMAU on UK TV this year. We all benefit from their bravery and the taboo about the subject is becoming weaker, as well as hopefully raising awareness amongst the medical system. The influential effect of appearing in the media cannot be underestimated. Thanks to you all. The video is on the 'This Morning' website but not viewable to those outside the UK, so a copy has been put on youtube. Claire regularly posts on the tmau.org.uk forum, which again played a pivotal role in making an appearance possible. Our thanks again to the site owner, Big Vern, for all he is doing for the community.

1 comments:

Anonymous said...

Just saw this and impressed by the level of professionalism of everyone involved. Thank you Claire for your courage. You are a beautiful person.

Jan 10, 2014, 3:06:00 PM
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