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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, July 23, 2010

Lady with TMAU on UK morning TV programme

Claire appeared on the popular mid-morning UK TV lifestyle programme 'This Morning' on Tuesday 20th July, to talk about her trimethylaminuria. The subject was handled very sensitively and will lead to further awareness of TMAU. Claire made sure they understood that 'fish body odor' was not a correct description in her case, and used the terms 'pooey' and 'garbage' to describe her smells, which is a brave admission and one many of us can more relate to. Thank you to Claire for courageously appearing on TV. Amazingly, This is the 3rd person to talk about their TMAU on UK TV this year. We all benefit from their bravery and the taboo about the subject is becoming weaker, as well as hopefully raising awareness amongst the medical system. The influential effect of appearing in the media cannot be underestimated. Thanks to you all. The video is on the 'This Morning' website but not viewable to those outside the UK, so a copy has been put on youtube. Claire regularly posts on the forum, which again played a pivotal role in making an appearance possible. Our thanks again to the site owner, Big Vern, for all he is doing for the community.


Anonymous said...

Just saw this and impressed by the level of professionalism of everyone involved. Thank you Claire for your courage. You are a beautiful person.

Jan 10, 2014, 3:06:00 PM
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