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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Sunday, September 19, 2010

Thames Festival Meetup 2010

Click twice on embeded Carnival video for additional footage
As I mention in previous posts, our meetup at the Thames Festival was a special occasion that provided us with a magnificent setting in which to meet very special people. There is such beauty in the distinct uniqueness in each of us just waiting to be released, and this meetup served as a place where our inner selves broke through in a liberating outburst of laughter, contentment, and peace. Stressed and tormented faces turn into a reflection of pure joy in this process, especially when after discussing our conditions with each other, we moved on to enjoy the festivities that surrounded us. On Sunday, we were more actively involved in the events of the Festival as we walked from one end to the other. Although we had plenty of time to discuss protocols and experiences, we made it a point to just share the ‘here and now’ and to feel free to be moved by the music, laugh out loud at our friends' wittiness, feel total pleasure in the company of friends, and to simply rejoice in the moment. It was great fun to be in the company of people with the same ailment, and to feel as if though the condition was nonexistent, even if just for a while. During the meetup one hears comments such as, “…it gave me a chill being among people who have the same problem and who understand…” A meetup acquires a special dimension when after much discussion of various odor-management protocols as well as the sadness and frustration that inherently come with these conditions, a second phase follows promoting healing by simply having fun together! Invariably, this and other meetups turn out to be healing experiences, especially for people who rarely get the opportunity to feel such freedom. I hope this video gives every reader the opportunity to experience with us this sense of "letting go".
María de la Torre Founder and Executive Director MEBO Research


Anonymous said...

Wow looks like it was a wonderful event. Wish i was there :) Awesome pics btw.

Sep 20, 2010, 2:27:00 AM
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