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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, November 30, 2010

MEBO Research Worldwide Database of TMAU Test Results

MEBO Research aims to widen knowledge of trimethylaminuria worldwide, both to the public and to health care professionals and researchers.

As part of this process, MEBO Research is launching a voluntary Worldwide Database of TMAU Test Results.

We aim to collect TMAU test result data in a largely unidentifiable manner. One copy of the database will be private and only shown discretely to parties who may be able to help us. The other will be a publicly viewable database on the MEBO Research website and blog, so that people can look at the results and compare. There is no directly identifiable information requested, such as your real name.

This way, everyone can learn about the different testing sites, their protocols and reference ranges, as well as to get an overview of the TMAU results. This database should also raise awareness.

Volunteers can skip any of the questions except the first one in each section, the phenotype and genotype test information.

Anyone wishing to add their results may do so through the form given below, or click on the link,

Note : This is a separate project from the testing project we are working on with Eliapharma Services Inc.

Number of entries so far : 2

PersonTest Labprovocation and sample typeTMA TMA
CreatinineFMO3 Capacity %Possible Implication
(expert opinion needed)
1Sheffield UK
via Mullhaven
24 hour high-choline diet then early morning sample
153.31242.410.889%TMAU2TMAO very high, as is TMA
2Sheffieldhigh-choline diet &
2Sheffhigh choline diet18.989.97.482.6%Border TMAU1
View the most recent copy of the full table here :


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