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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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NORD Member Organization
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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Tuesday, November 30, 2010

MEBO Research Worldwide Database of TMAU Test Results


MEBO Research aims to widen knowledge of trimethylaminuria worldwide, both to the public and to health care professionals and researchers.

As part of this process, MEBO Research is launching a voluntary Worldwide Database of TMAU Test Results.

We aim to collect TMAU test result data in a largely unidentifiable manner. One copy of the database will be private and only shown discretely to parties who may be able to help us. The other will be a publicly viewable database on the MEBO Research website and blog, so that people can look at the results and compare. There is no directly identifiable information requested, such as your real name.

This way, everyone can learn about the different testing sites, their protocols and reference ranges, as well as to get an overview of the TMAU results. This database should also raise awareness.

Volunteers can skip any of the questions except the first one in each section, the phenotype and genotype test information.

Anyone wishing to add their results may do so through the form given below, or click on the link,

Note : This is a separate project from the testing project we are working on with Eliapharma Services Inc.



Number of entries so far : 2


PersonTest Labprovocation and sample typeTMA TMA
-oxide
CreatinineFMO3 Capacity %Possible Implication
(expert opinion needed)
comment
1Sheffield UK
via Mullhaven
24 hour high-choline diet then early morning sample
153.31242.410.889%TMAU2TMAO very high, as is TMA
2Sheffieldhigh-choline diet &
menstruation
18.854.35.174.2%TMAU1menstruating
2Sheffhigh choline diet18.989.97.482.6%Border TMAU1
View the most recent copy of the full table here :

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