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anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov
MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

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TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


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Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Monday, January 17, 2011

Clinical Trimethylaminuria test lab in South Africa



South Africa TMAU test
It appears that a clinical test lab in South Africa exists that offers the trimethylaminuria urine test. We sent an email but so far got no reply. It seems likely that to test there will require a Doctor's referral. If anyone has any more information, we would be happy to learn of it.

The lab is :

Laboratory for Inborn Errors of Metabolism
the School for Biochemistry
North-West University
Potchefstroom

The link for the PDF giving information on their TMAU test can be found on this page :
South Africa lab testing for Trimethylaminuria (TMAU)
South Africa TMAU test : PDF instructions

posted by blogcontributor2 on 1/17/2011
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1 comments:

Jano Jacobs said...

Good afternoon.
I work at the Laboratory for Inborn Errors of Metabolism.
Yes, We do offer the TMA test. I have no idea why your email was unanswered. Please contact us again SA tell:+2718 299 2302 or email ansie.mienie@nwu.ac.za

Apr 19, 2012, 9:05:00 AM
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