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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Saturday, August 13, 2011

Volunteer TMAU test data table




MEBO Research public TMAU database
Currently, the community has no access to trimethylaminuria test data, meaning those with the most interest in finding a cure have no information on testing patterns that may help us to better understand the disorder.

Nigel Manning, the Principal Clinical Scientist of Dept. Clinical Chemistry at Sheffield Children's Hospital and the only current trimethylaminuria phenotype tester in the UK did kindly give MEBO Research a PDF document a while ago that contained much appreciated anonymous information on his testing results of up until 2009.




Sheffield TMAU results up to 2009.
Those to the right are genetic TMAU.
Above the line is trimethylamind (TMA) overload.
According to the reference ranges that Sheffield have set
to help understand TMAU better, MEBO Research have started a voluntary anonymous 'TMAU test result database,' which is available for public viewing. So far only a few testers from the Sheffield lab have kindly added their results. If anyone from anywhere wishes to add their results, they are welcome to do so through this form. There is no need to give any more information than you wish to.

This would also help people understand the different reference ranges and protocols of the labs currently testing. For instance, it is our understanding that the Denver lab expects a person to convert 92% of TMA to trimethylamine N-oxide (TMAO), whereas Sheffield only expects around 82% to be converted from TMA to TMAO. Since TMAU is such a 'neglected' problem, so few labs test for it and there is much more yet to be understood.

The database is held in a Google Docs spreadsheet, and the public version will be a PDF document hosted on the MEBO Research website that will be regularly updated.

(PDF document hosted on the MEBO Research website)


Or you can fill the form below :

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