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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, August 13, 2011

Volunteer TMAU test data table

MEBO Research public TMAU database
Currently, the community has no access to trimethylaminuria test data, meaning those with the most interest in finding a cure have no information on testing patterns that may help us to better understand the disorder.

Nigel Manning, the Principal Clinical Scientist of Dept. Clinical Chemistry at Sheffield Children's Hospital and the only current trimethylaminuria phenotype tester in the UK did kindly give MEBO Research a PDF document a while ago that contained much appreciated anonymous information on his testing results of up until 2009.

Sheffield TMAU results up to 2009.
Those to the right are genetic TMAU.
Above the line is trimethylamind (TMA) overload.
According to the reference ranges that Sheffield have set
to help understand TMAU better, MEBO Research have started a voluntary anonymous 'TMAU test result database,' which is available for public viewing. So far only a few testers from the Sheffield lab have kindly added their results. If anyone from anywhere wishes to add their results, they are welcome to do so through this form. There is no need to give any more information than you wish to.

This would also help people understand the different reference ranges and protocols of the labs currently testing. For instance, it is our understanding that the Denver lab expects a person to convert 92% of TMA to trimethylamine N-oxide (TMAO), whereas Sheffield only expects around 82% to be converted from TMA to TMAO. Since TMAU is such a 'neglected' problem, so few labs test for it and there is much more yet to be understood.

The database is held in a Google Docs spreadsheet, and the public version will be a PDF document hosted on the MEBO Research website that will be regularly updated.

(PDF document hosted on the MEBO Research website)

Or you can fill the form below :


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