Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out

Labels

March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Thursday, September 22, 2011

Where are all of MEBO Research's online site?

Since MEBO Research has multiple sites, it seems to be confusing for some people to determine where to find information. Therefore, I would like to give a brief description of each site:

  1. MEBO Research's website, www.meboresearch.org : This site focuses on the Organization itself, including the English Not-For-Profit company aspiring to become a Charity, and the US Public Charity. This website also presents a very brief outline of the various types of body odor conditions. The Navigation menubar links to other MEBO Research sites as well as to other community sites.

  2. The MEBO Forum, www.meboresearch.org/forum: This forum is not intended to replicate the topics and "style" of communication used in other forums; each style of communication is valuable to our community, and we need diversity - not more of the same. Instead, the MEBO Forum is a place that attempts to organize the various MEBO Programs under the direction each director of MEBO's Board of Directors. The community is welcomed to participate in these programs either by posting in the MEBO Forum with recommendations, in a Private Message (PM) in the MEBO Forum, a phone call to the respective director of the program of interest, or in the bi-weekly conference calls. The Navigation menubar of the main MEBO sites refer visitors to various multilingual forums of our international community; a similar menubar will soon be put in this forum as well.

  3. The English MEBO Blog, www.bloodbornebodyodorandhalitosis.com : This is where the founders of MEBO Research initiated our Mission, back in 2008, before MEBO was an organization registered in England in 2009, and eventually a registered Public Charity in the United States in 2010. Currently, this blog has 935 posts. Visitors may use the "Search posts through Labels" and the "Search this Blog" engines found on the upper right sidebar, to look for keywords on topics of concern.

  4. The Spanish MEBO Blog, www.olorcorporalyhalitosis.com : This is the Spanish version of MEBO's Blogs also started in 2008.


PLEASE SIGN THE PETITION TO,

  • raise awareness of systemic body odor conditions in the medical community
  • governments to increase direct federal funding
  • make scientific research of various types of body odor diseases a high-priority; including but not limited to, Trimethylamimuria (TMAU)
  • efforts so that effective treatments and cures can be found.

PLEASE ASK YOUR FAMILY, FRIENDS, AND SUPPORTERS TO SIGN.
Anyone can select to either display or not display
his or her signature publicly on the petition.
PLEASE INDICATE YOUR COUNTRY OF RESIDENCE TO REPRESENT
A UNITED INTERNATIONAL COMMUNITY.



María de la Torre
Founder and Executive Director

A Public Charity

www.meboresearch.org

maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
body odor petition
MEBO Research

0 comments:

Post a Comment