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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

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Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, December 9, 2011

Disability Benefits Presentation at MEBO’S Washington DC 2011 Meetup

With the economic recession and high unemployment rate, many sufferers have experienced difficulty finding and keeping jobs. This economic state only aggravates the employment challenges customarily encountered by sufferers during good economic times. Consequently, many have fallen into a serious state of depression and anxiety, and a quite a few have emailed Cheryl Fields, MEBO's Community Outreach Director and me asking for information about the application process for Social Security benefits in the United States.

In light of these difficult times that so many sufferers are going through, and to address the questions about the qualifications for these disability benefits, I would like to present the,
that she did on a conference call that came into our Washington DC Meetup this year, since she was unable to physically attend due to last minute problems with her flight. I think this presentation should answer many questions sufferers may have at this time.


Cheryl, also known on the forums as "Dr. StillStanding," is a TMAU sufferer herself who fought through all the obstacles this condition brings to earn a Bachelor Degree in General Business, a Master's Degree in Business Administration (MBA), and is a Doctoral Candidate (PH.D./ABD) in Human Resources Management, from the School of Business. Her achievements are great by any standards, and especially so as a body odor sufferer who has had to fight through many the many challenges this condition brings along the way.

Even though Cheryl is always available to speak to any sufferer who needs to tap into her knowledge, please keep in mind that Cheryl is recovering from surgery she had just prior to Thanksgiving. Hopefully, the transcript of her presentation will answer your questions. I'm certain that everyone will join me in wishing Cheryl a speedy recovery.


María de la Torre
Founder and Executive Director

A Public Charity
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Anonymous said...

Get well soon Dr. =)

Dec 13, 2011, 6:31:00 AM
Anonymous said...

I second that!!!!!!! Get well, best wishes........

May 15, 2013, 8:00:00 PM
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