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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Wednesday, October 10, 2012

TMAU webinar 28 Oct : Dr Robin Lachmann and dietician

Trimethylaminuria webinar
Guest speakers : Dr Robin Lachmann
and dieticians Heidi Chan and Charlotte Ellerton
Sunday 28th October 7pm UK time
Webinar title :  Diagnosis and Treatment of TMAU - The London Experience
Everyone welcome
Webinar room : rareconnect webinar room for TMAU

brought to you by :
rareconnect.org and FMO3/TMAU advocates

About Dr Robin Lachmann and the Charles Dent Metabolic unit :

Dr Robin Lachmann PhD FRCP
Consultant in Metabolic Medicine
Charles Dent Metabolic Unit
Box 92
National Hospital for Neurology and Neurosurgery
Queen Square
London WC1N 3BG

We are delighted to announce the 3rd of our series of TMAU/FMO3 webinars will be Dr Robin Lachmann, who is well-known and respected in the TMAU community. For a number of years Dr Robin Lachmann has been the most prominent consultant for TMAU cases in the UK. Dr Lachmann is a Consultant in Metabolic Medicine in the Charles Dent Metabolic Unit in London. The unit helps and advises adolescents and adults with metabolic disorders. Along with Dr Lachmann will be 2 of the unit's dieticians ; Heidi Chan and Charlotte Ellerton

About the Charles Dent Metabolic Unit for TMAU and other metabolic disorders

About the webinar : Dr Lachmann will talk about the clinical aspects of TMAU, and the unit's dietician is expected to talk about diet, and also may talk about the results of a survey they recently completed. The guests will then take questions from the audience.

pre-questions for Dr Lachmann and the dieticians can be put here  :  TMAU webinar questions 


related links :
previous interview with Dr Lachmann on TMAU

1st webinar : Karen on how important the media are to raise awareness of TMAU
2nd webinar : Prof. Shephard & Phillips : FMO3, bugs genes and drugs

rareconnect.org TMAU pages and forum


A EURORDIS and
NORD Member Organization

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