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MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO Private Facebook Group
to join : go to
or contact
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BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Wednesday, October 10, 2012

TMAU webinar 28 Oct : Dr Robin Lachmann and dietician

Trimethylaminuria webinar
Guest speakers : Dr Robin Lachmann
and dieticians Heidi Chan and Charlotte Ellerton
Sunday 28th October 7pm UK time
Webinar title :  Diagnosis and Treatment of TMAU - The London Experience
Everyone welcome
Webinar room : rareconnect webinar room for TMAU

brought to you by :
rareconnect.org and FMO3/TMAU advocates

About Dr Robin Lachmann and the Charles Dent Metabolic unit :

Dr Robin Lachmann PhD FRCP
Consultant in Metabolic Medicine
Charles Dent Metabolic Unit
Box 92
National Hospital for Neurology and Neurosurgery
Queen Square
London WC1N 3BG

We are delighted to announce the 3rd of our series of TMAU/FMO3 webinars will be Dr Robin Lachmann, who is well-known and respected in the TMAU community. For a number of years Dr Robin Lachmann has been the most prominent consultant for TMAU cases in the UK. Dr Lachmann is a Consultant in Metabolic Medicine in the Charles Dent Metabolic Unit in London. The unit helps and advises adolescents and adults with metabolic disorders. Along with Dr Lachmann will be 2 of the unit's dieticians ; Heidi Chan and Charlotte Ellerton

About the Charles Dent Metabolic Unit for TMAU and other metabolic disorders

About the webinar : Dr Lachmann will talk about the clinical aspects of TMAU, and the unit's dietician is expected to talk about diet, and also may talk about the results of a survey they recently completed. The guests will then take questions from the audience.

pre-questions for Dr Lachmann and the dieticians can be put here  :  TMAU webinar questions 


related links :
previous interview with Dr Lachmann on TMAU

1st webinar : Karen on how important the media are to raise awareness of TMAU
2nd webinar : Prof. Shephard & Phillips : FMO3, bugs genes and drugs

rareconnect.org TMAU pages and forum


A EURORDIS and
NORD Member Organization

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