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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, October 10, 2012

TMAU webinar 28 Oct : Dr Robin Lachmann and dietician

Trimethylaminuria webinar
Guest speakers : Dr Robin Lachmann
and dieticians Heidi Chan and Charlotte Ellerton
Sunday 28th October 7pm UK time
Webinar title :  Diagnosis and Treatment of TMAU - The London Experience
Everyone welcome
Webinar room : rareconnect webinar room for TMAU

brought to you by : and FMO3/TMAU advocates

About Dr Robin Lachmann and the Charles Dent Metabolic unit :

Dr Robin Lachmann PhD FRCP
Consultant in Metabolic Medicine
Charles Dent Metabolic Unit
Box 92
National Hospital for Neurology and Neurosurgery
Queen Square
London WC1N 3BG

We are delighted to announce the 3rd of our series of TMAU/FMO3 webinars will be Dr Robin Lachmann, who is well-known and respected in the TMAU community. For a number of years Dr Robin Lachmann has been the most prominent consultant for TMAU cases in the UK. Dr Lachmann is a Consultant in Metabolic Medicine in the Charles Dent Metabolic Unit in London. The unit helps and advises adolescents and adults with metabolic disorders. Along with Dr Lachmann will be 2 of the unit's dieticians ; Heidi Chan and Charlotte Ellerton

About the Charles Dent Metabolic Unit for TMAU and other metabolic disorders

About the webinar : Dr Lachmann will talk about the clinical aspects of TMAU, and the unit's dietician is expected to talk about diet, and also may talk about the results of a survey they recently completed. The guests will then take questions from the audience.

pre-questions for Dr Lachmann and the dieticians can be put here  :  TMAU webinar questions 

related links :
previous interview with Dr Lachmann on TMAU

1st webinar : Karen on how important the media are to raise awareness of TMAU
2nd webinar : Prof. Shephard & Phillips : FMO3, bugs genes and drugs TMAU pages and forum

NORD Member Organization


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