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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, June 27, 2015

Cheryl Field's last handout, EMPLOYMENT TIPS & REFERENCES" 2015

Click for copy of Cheryl's
last handout for MEBO
It was only two weeks before I went on my vacation on June 3rd that I had corresponded with Cheryl, and now she's gone. We've had our share of intimate correspondences through the years in which both supported each other through our trials, and when illnesses pushed us down, we helped each other get back on our feet again to move forward in the MEBO Mission. Even though I know she is gone, she still lives inside those of us who knew her. I know that if it is at all in her power, she'll be up there rooting for us until we find a cure.

Among many other contributions Cheryl gave to our community, it was Cheryl’s proactive involvement in Rare Disease Day 2012 representing TMAU sufferers, which introduced MEBO to the RareConnect leadership and brought MEBO towards membership with NORD and EURORDIS. Through these organizations, countless sufferers have found a community that offers support and guidance. With Cheryl’s seemingly endless personal inspiration and with her wealth of knowledge on Human Resource and employment issues, she has empowered many sufferers who up to that time had felt totally helpless. She did so much for our community, and many of her activities can be found in the MEBO Community Blog, under Label, 'Cheryl Fields PhD."

Many lives have been touched and changed for the better, thanks to Cheryl’s endless dedication to the well-being of others. Not only was she supportive and loving to her family, she was also loving and supportive to her other family, TMAU sufferers around the world. When Cheryl offered her services to MEBO, she kindly accepted the position that was immediately offered to her of Community Outreach Director. This position allowed her to take the free reign and she flew with it. She did not hesitate to put her name on the MEBO Blogs and websites inviting sufferers to call her if they needed someone to talk to any time of day or night. She was always encouraging us to never give up, and to be like her, “Dr. Still Standing.” Somehow, when she spoke these words, we felt that she was talking to each one of us individually. What a lovely spirit she had inside of her! What healing was done through her! Her light will always shine inside each of us whose lives she’s changed. Cheryl is still with us as we move forward promoting her cause.

Please feel free to write in the Book of Memories
for Cheryl's family


María de la Torre
Founder and Executive Director

A Public Charity
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)

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A EURORDIS and NORD Member Organization


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