MEBO is proud to be a EURORDIS member, and is always very interested in news from EURORDIS and the rare disease community. There are now some new developments on RareConnect.org, the social network of rare disease communities. We believe these changes will ensure RareConnect reaches an even greater number of people living with a rare disease:
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Please participate in the RareConnect Trimethylaminuria community, where most sufferers around the world first discover online support for breath and body odor sufferers. This could very well be a lifeline to many.
María
María de la Torre
Founder and Executive Director
A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
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