Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out


March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, March 17, 2016

Cassie TMAU documentary on UK TV 24th March

TMAU Activist Cassie Graves on UK TV next week
Thursday 24th March, 8pm , Channel 5
Cassie allowed filming of her TMAU diagnosis journey last year

Update : watch Cassie TMAU video in this post 

Cassie Graves has done a number of high-profile media TMAU articles to raise awareness, including an article in the most read online newspaper website The Daily Mail . Last year she allowed a TV production crew to film her on her 'TMAU diagnosis journey'. The story will appear on UK TV next week. It looks like it will be 1 of 3 stories intertwined over an hour.

UK Channel 5
8pm Thursday 24 March
MEDICAL MYSTERIES : Series 1 Episode 1
Channel 5 live (UK only ? ) : Link
Other Channel 5 live (UK only ?) : Link2

Post from Cassie this week in the MEBO private Facebook group

Been out of the loop for a while because I'm getting myself forward in UK politics and just started at university.

My life has had a massive overhaul, I'm on anti-depressants, in therapy, and I've quit music, and I've kind of tried to keep focused on my civil rights lately.

But I just wanted to let you lovely lot know that on March 24th at 8pm in the UK, I will be on Channel 5. The documentary I filmed last year filming my diagnosis journey will finally be airing, and despite being a minor-ish story, the episode has been named after me (which I found kind of amusing).

So if you can/want to, those are the details. I don't watch myself on screen, so I won't be watching it for a while (also I'm at a political meeting that evening), but I did film it to spread awareness

Cassie is already in the TMAU 'Hall of Heroes' along with Camille, Sandy, Arun, Cheryl Fields, Karen, Ellie, Claire, and the others who have appeared in the media including Youtubers, to raise awareness of what must be the most embarrassing disorder and is still unknown to probably 99% of Health professionals and public. Thank you to Cassie and all of you. We are in your debt.

Links :
Cassie on Twitter
Cassie on Youtube

Subscribe for latest posts : Enter your email address:

Delivered by FeedBurner

A EURORDIS and NORD Member Organization


Anonymous said...

Just watched this now on tv. Great Job.

Mar 24, 2016, 5:36:00 PM
Post a Comment