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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Monday, February 27, 2017

Swedish TV show Outsiders looking for volunteer

Malodor-concerned Volunteer wanted for Swedish TV program (Outsiders, made by Titan TV).
TMAU or think they have TMAU ? (or metabolic BO/halitosis ?).
for series 14 of 'Outsiders' on Kanal 5.

contact :
matilda.borjesson@titan.se

They would like a Swede but would accept anyone ...
Swede,
Scandinavian,
European,
British,
American ?
etc

Outsiders is a popular Swedish TV show with a mix of 3 'people' stories in 60 minute shows.
They will follow you for a documentary of your life (probably edited to about 15 mins ?).
Outsiders on Kanal 5 is made by Titan TV.

Hoping to film in MARCH.
Any lost income would be reimbursed (please check).
Hoping to air in April/May.

If interested, contact :
Matilda Börjesson
Titan Television
matilda.borjesson@titan.se

This will be a piece in the series where we mix up different rare conditions to teach people about them and follow the people in their everyday lives. Usually we follow three different people/cases per show. Each show is 60 minutes long.

Cassie on UK 'Medical Mysteries' 2016

It will likely be similar to the UK TV program 'Medical Mysteries', which in 2016 Cassie kindly volunteered for.




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A EURORDIS and NORD Member Organization

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