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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, February 27, 2017

Swedish TV show Outsiders looking for volunteer

Malodor-concerned Volunteer wanted for Swedish TV program (Outsiders, made by Titan TV).
TMAU or think they have TMAU ? (or metabolic BO/halitosis ?).
for series 14 of 'Outsiders' on Kanal 5.

contact :

They would like a Swede but would accept anyone ...
American ?

Outsiders is a popular Swedish TV show with a mix of 3 'people' stories in 60 minute shows.
They will follow you for a documentary of your life (probably edited to about 15 mins ?).
Outsiders on Kanal 5 is made by Titan TV.

Hoping to film in MARCH.
Any lost income would be reimbursed (please check).
Hoping to air in April/May.

If interested, contact :
Matilda Börjesson
Titan Television

This will be a piece in the series where we mix up different rare conditions to teach people about them and follow the people in their everyday lives. Usually we follow three different people/cases per show. Each show is 60 minutes long.

Cassie on UK 'Medical Mysteries' 2016

It will likely be similar to the UK TV program 'Medical Mysteries', which in 2016 Cassie kindly volunteered for.

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