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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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at UK Findacure conf 2020

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, June 12, 2018

TMAU Fundraiser to Fund approved Gut Microbiota Research

It's important to point out that countries in the 
continents of Africa and South AMERICA
the Philippines and others
are among the primary destinations to where donations for shipments will be made.

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A EURORDIS and NORD Member Organization

Thank you very much, TMAU UP
for promoting this very good cause!
It is much appreciated!

To be clear, donation will cover international shipping costs to countries to which international shipping  from California is very expensive, and thus prohibitive, and particularly since it must be paid in US Dollars. The receiver of the research kits will be asked to pay as much as they can afford, and the funds created by donations would cover the rest.

Since MEBO Research is a wholly volunteer Charity registered in the United States and in England and Wales, donors can rest assured that 100% of their donations will go directly to the cause of supporting international sufferers cover shipping cost of their kits. Donations will not only help fellow sufferers participate in testing, who otherwise would never get the opportunity to test, but at the same time, they will help contribute to the cause of pursuing the most diverse data possible to give greater value to the research study we are undertaking. They will make a difference for the recipient and the community as a whole. Donations will help to enrich the Gut Microbiota grant funded research with interesting data from a diverse pool of participants. It will go 100% towards that, since all labor involved in the study is volunteer.

Donations are helpful in allowing the Principal Investigator, Irene Gabashvili, PhD., MEBO's Scientific Director, to select participants based on their qualifications as opposed to their geographic location. In the end, this better participant selection opportunity will provide valuable information that hopefully will bear greater understanding of the various causes of odor/PATM conditions, which is the first step towards determining targeted precision treatment.

The primary aim of this research is to provide MEBO'S Scientific Director, Irene Gabashvili, PhD., with very valuable information, and and with assistance from uBiome scientists, to analyze what role gut microbiota has in idiopathic odor and PATM conditions. With greater understanding of the role of gut microbiota, it is hoped that targeted, precision protocols could be developed for the different conditions. Irene and uBiome will then publish their findings in professional journals so that all professionals in the scientific and medical fields will have access to the research findings. The ultimate aim is so that when a sufferer visits his or her physician with odor/PATM symptoms, proper diagnostic tests are performed resulting in precise medicine treatment. As I noted in my Introductory Letter in this Blog on April 10, 2008,

It is my sincere wish that the outcome of this effort will result in a future commonplace practice of a sufferer going to his or her family doctor anywhere in the world presenting with body odor as his or her primary complaint, that the physician would immediately know what metabolic and/or microbial diagnostic exams are indicated in order to arrive at a speedy diagnosis and treatment plan to control and eliminate body odor.


María de la Torre
Founder and Executive Director

A Public Charity
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)


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