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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov
MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

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THE BOY WHO
SMELLS LIKE FISH

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TREADING WATER
See trailer'
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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Monday, July 2, 2018

Consent, Procedure & Life Quality Test Forms MEBO Microbiome Study

MEBO GUT MICROBIOME STUDY
Consent Form, Procedures & Life Quality Test Form


English:
  • Research Consent for the ongoing MEBO Microbiome study
  • Procedures
  • MEBO/PATM Life Quality Test
http://olfactics.aurametrix.com/2018/06/research-consent-for-upcoming-ubiome.html

Procedures in English

Click on icon for full view
Click on icon for full view
These instructions for the 3 kits are in keeping with the study's aim of identifying gut microbiota composition when participants are in each of these 2 physical and emotional states. These can be found in the online Consent Form.

Español:
  • Consentimiento de investigación para el estudio MEBO Microbiome
  • Procedimientos (ver abajo)
  • Prueba de calidad de vida MEBO / PATM
http://olfactics.aurametrix.com/2018/07/consentimiento-de-investigacion-para-el.html

Procedimientos en español

Haga clic para vista completa
Haga clic para vista completa
Estas instrucciones para los 3 kits están en consonancia con el objetivo del estudio de identificar la composición de la microbiota intestinal cuando los participantes se encuentran en cada uno de estos 2 estados físicos y emocionales. Estos se pueden encontrar en el Formulario de consentimiento en línea.

María

 María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
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A EURORDIS and NORD Member Organization

posted by Maria de la Torre on 7/02/2018
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