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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, October 8, 2018

No longer recruiting participants MEBO Gut Microbiome Study

MEBO Research is most grateful to the hundreds of applicants who answered the pre-screening questions below in an effort to become participants in the uBiome funded MEBO Gut Microbiome Study, "Microbial Basis of Systemic Malodor and PATM Conditions (PATM)" registered with

We are no longer recruiting participants for this study
All 100 applicants from around the world have been selected and have received their kits for sample collection. We are no longer recruiting participants for this study, though anyone interested in being considered for future research and/or testing participation opportunities with MEBO may send me a private email with the answers to the questions  (click on icon below) to be placed in the MEBO Master Database. Answers to the questions may be sent to .

Click on icon for questions

The following is a timeline of this research study:

May 8, 2018

MEBO awarded a study grant from UBIOME

June 10, 2018
Fundraiser to support international shipments to participants (Customs fees, return shipping cost)

Donations "Gut Microbiota in Idiopathic Malodor Production" Research

June 27, 2018

Q&A RE: MEBO Gut Microbiome Study funded by a uBiome Grant

July 2, 2018

Consent, Procedure & Life Quality Test Forms MEBO Microbiome Study

Much gratitude goes to all who applied to participate in any and all MEBO test and/or research program.


María de la Torre
Founder and Executive Director

A Public Charity
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Anonymous said...

If fecal transplant can help, why is it limited to patients with c-diff

Oct 13, 2018, 11:20:00 PM
Maria de la Torre said...

Probably due to lack of research for other conditions. Without research, there is too much uncertainty about the outcome of any procedure or medication.

Oct 21, 2018, 5:01:00 PM
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