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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Wednesday, July 31, 2019

TMAU Petition : Dominican Republic

A young lady has started a TMAU Petition on
Anyone can sign a petition.

TMAU Petition (Dominican Republic)
to Ministry of Public Health
Dominican Republic

Petition (spanish .... original language)

Promover la concientizacion y realización de análisis para el TMAU (Mal olor corporal)

to Ministerio de salud publica

El TMAU o también llamado Síndrome de olor a pescado es un raro desorden metabólico que afecta a nivel Psicosocial a quienes lo padecen.
Soy una chica que posiblemente padezca la enfermedad pero que gracias a la ignorancia del sector de la salud en República Dominicana no tenga en mis manos un diagnóstico y por lo tanto no pueda tratarse. ¿Que como se que es posible que tenga el TMAU? Mi respuesta es la Internet y gracias a esta he podido enterarme de que alrededor del mundo hay cientos de personas que no han sido diagnosticadas o que gracias a los altos costos no han podido llevar a cabo la realización del estudio. También me enterado que no existe cura... Ahora imaginate vivir el resto de tu vida siendo rechazado por la sociedad, aislado de las personas, sin vida social, sin un diagnóstico, sin la comprensión de los demás y sólo la crueldad de las personas ante los desagradables síntomas de esta enfermedad.
Es por ello que hago esta petición, porque todos aquellos que tenemos la sensación o los síntomas de esta enfermedad merecemos por lo menos un diagnóstico, un tratamiento que nos permita tener una vida lo más remotamente normal, que cuando se busque asistencia médica no se te diga que es un problema en tu cabeza, que es algo psicológico porque no lo es, merecemos comprensión y una oportunidad de vida. Esta petición es para hacer una llamado al sector de la salud y a todo aquel que pueda ayudarnos a quienes posiblemente tengamos el TMAU, si esta petición tiene éxito será un alivio para la comunidad Tmau, será una oportunidad de vida!!

In english ...
Promote awareness and analysis for TMAU (Bad body odor)

to Ministry of Public Health

TMAU or also called Fish Smell Syndrome is a rare metabolic disorder that affects those who suffer from it at the Psychosocial level.
I am a girl who possibly suffers from the disease but that thanks to the ignorance of the health sector in the Dominican Republic does not have a diagnosis in my hands and therefore cannot be treated. How do I know what TMAU might have? My answer is the Internet and thanks to this I have learned that around the world there are hundreds of people who have not been diagnosed or that thanks to the high costs they have not been able to carry out the study. I also learned that there is no cure ... Now imagine living the rest of your life being rejected by society, isolated from people, without social life, without a diagnosis, without the understanding of others and only the cruelty of people before the unpleasant symptoms of this disease.

That is why I make this request, because all those who have the sensation or symptoms of this disease deserve at least a diagnosis, a treatment that allows us to have a life as remotely normal, that when you seek medical assistance you are not Say that it is a problem in your head, that it is something psychological because it is not, we deserve understanding and a chance of life. This request is to make a call to the health sector and anyone who can help us who may have the TMAU, if this request is successful it will be a relief for the Tmau community, it will be a chance of life !!

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